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comfortable with ALS

Distinguished member
Joined
Sep 24, 2007
Messages
111
Reason
Other
Diagnosis
n/a
Country
US
State
mi
City
st.clair shores
Hey everyone, it has been a while since i have been on...I miss everyone on here so much. I have been really tired and playing with my daughter.....The muscle loss is getting worse day by day and the fatigue i have is so bad. One thing that has made me a little upset is when i see that Wright is always not right. And it makes me mad that you just assume that nobody has anything wrong with them? I dont get it I have been batiling with symptoms for 2 years and now look where it got me to this forum...wright I am sorry what do you have again? I am not being mean at all when i ask this and if you have ALS iam very sorry. I just have read some of your post and they are kind of like your an ALS specialist and really your not....Dont be so quick to judge. Go back and read all my post from when i first came on here then you should understand. I am not attacking you in any way wright just wondering what is going on? I will keep everyone updated. Didnt everyone love the 4th of july? My best friend went to the base ball game and met a lot of ALS patients.. She is so caring..I would be lost without her! Jenny benny
 

joelc

Moderator emeritus
Joined
Jul 15, 2006
Messages
2,786
Reason
PALS
Diagnosis
09/2005
Country
CA
State
BC
City
Abbotsford
Jenny, he is our resident medical expert that gives of his time to help people who are concerned they have ALS type of symptoms. If you read the posts he is responding to you will come to understand why he says what he does. Out of curiosity, when has he been wrong? Have you been diagnosed with ALS, you sound like you have but it is not noted in your profile. If you don't then I really hope you never do!
 

Blackpool

Distinguished member
Joined
Jun 19, 2009
Messages
270
Reason
PALS
Diagnosis
07/2009
Country
CA
State
Alberta
City
Edmonton
When I posted the first time he told me that Drs have to run all these test before they can diagnosed he told me to sit back relax and enjoy it, it made me smile and gave me the reprive I needed, who needs the worry until it is confirmed.
 

BarryG

Extremely helpful member
Joined
Nov 19, 2008
Messages
2,981
Diagnosis
02/2008
Country
CA
State
Alberta
City
Hinton
who needs the worry until it is confirmed.

Blackpool, truer words were never spoken. I only wish that everyone would heed them.

Barry
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Hey Jenny. Nice to hear from you but why you picking on Wright? You haven't posted in 4 months and then you jump in with guns blazing. What's up?

AL.
 

Lorie

Senior member
Joined
May 17, 2007
Messages
546
Reason
Loved one DX
Country
Uni
State
Alabama
City
Mobile
Neurologist

No Offense meant!

I pay a Neurologist who see's by the progression of my test results and body symptoms and eye visible problems. I prefer that.

There are some people that come on here in a panic that don't even need to be here. If he can ward them off, I am happy!

My Friend Jenny: I have already been there. :roll: If you look back on my older post you will see it. It was not very pretty. Read my new post. I don't have to say anymore or have to prove to anybody what is going on with me. I am just telling my story just like everybody else. And of course my brother has ALS, that is why I am here in the first place.

The purpose of this Forum is for people to talk about there problems or concerns about ALS. Or just for support. Not to have Battles with people. You just stirred up a few people! If people take/like his advice. That is ok. We avoid each others post. Not because I don't like him. I think we agree to disagree.

By the way, You know I keep up with you. Having a young child and problems of your own physically. I can understand why you have not posted.

I did not post for a long time because I was helping with Tim. And him being in and out of Hospitals. And my own problems.

Lorie- Jenny, I don't think I would go there again!

Love to ALL,
Lorie
 
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