HHA needing suggestions

[RivalBlue]

Hi,
I'm a CNA doing homecare for a lady that has ALS. I've been working with her for just about two months now. I'm not experienced with ALS patients at all and could use some suggestions.
I work the night shift with her so her husband can get some sleep at night. He was doing it on his own up until a couple of months ago.
The first thing is that she hardly sleeps. She has a sleeping pill prescribed, but rarely takes it because of how groggy it makes her at night. Which I have tried to gently tell her that that's a good thing, and sleep is very important. She generally wakes up every half an hour without it.
Another is turning. Generally its a good idea to turn someone every two hours. She wants to turn about every hour, which isn't a bad thing. I've noticed the last couple weeks though her arms are getting weaker and any movement we do causes her to moan. I'm at a lose of what to do to help her. I just put a pillow behind her bottom to prevent pressure sores, but she has now resorted to snapping at me no matter how gently I do it. She complains of her shoulders hurting and the such. I go as slow and gently as I can but there is only so much I can do. We also have to turn her to put her on the bedpan so there's no getting around not turning.
Also any suggestions for muscle spasms? They wake her up many times throughout the night. We do range of motion 6-8 times throughout my 8hr shift, and stretches. I don't know what else to do that isn't prescribed. She takes a muscle relaxer but I have a feeling she needs a higher dosage. Unfortunately the husband won't take my suggestions and I'm not around when her hospice nurse is in.

Anyway thanks in advanced. She is a great lady, but I get to frustrated because nothing I can come up with seems to be helping her.

 

[affected]

Jo Sowem,

Fuit tji tmiiq op e jutqovem cif? Xjev lopf ug nevvsitt?

Tmiiqoph epf cioph dungusvecmi op cif ot e dunnup djemmiphi gus uas QEMT.

Vji kuopv qeop dep ci dsaim, epf xi jewi vu ci wisz desigam vjev monct esi piwis qammif op epz xez, epf vjev kuopvt esi taqqusvif fasoph iwiszvjoph vjev ot fupi. Summoph dep ci iyvsinimz foggodamv et ov xomm qav qsittasi up kuopvt us deati monct vu ci nuwif op xezt vjev dep jasv vji xetvif natdmit epf gsubip kuopvt e muv. QEMT xovj kuopv ottait esi emtu wisz tatdiqvocmi vu natdmit us vipfupt viesoph. Ov dep jeqqip xovj xjev tiint moli upmz tnemm qsittasi cioph eqqmoif.

Tu jis qeop ot qsucecmz wisz siem.

Fuit tji jewi e juotv? Ov nez ci ietois vu juotv jis uwis e cifqep vjep vsz vu vasp jis vu hiv jis up upi?

 

[Atsugi]

Jimmu Sowem. Huuf vu jies gsun zua. Hmef vu jies zua'si dupdispif gus zuas dmoipv't dungusv. Ev vji wisz mietv, tji piift e jutqovem cif xovj ep eavunevod suvevoph eos nevvsitt.

O'n tasi zua'mm hiv muvt ug tqidogod qsedvodem efwodi jisi vjsuahjuav vji fez epf pohjv. Tu O'f moli vu howi e gix wisz hipisem voqt gsun nz uxp woixquopv, xjodj zua nohjv emsiefz lpux, us puv.

Gostv, apmoli e sihames qevoipv, xju dep ci ipduasehif epf qatjif vjsuahj vji qeop apvom vjiz esi jiemif,
vji EMT qevoipv emxezt hivt xusti. Emm xi dep fu ot neli vjin [O]giim[/O] civvis, sifadoph vjios qeop epf, onqusvepvmz, vjios [O]gies[/O] og quttocmi. Neli jis jeqqz op vji qsitipv vipti. Jis gavasi, gseplmz, ot uav ug iwiszcufz't dupvsum.

Tidupf, nz qistupem cimoig ot vjev vji EMT qevoipv hivt xjeviwis vjiz xepv, iwip og ov lommt vjin. Vjiz esi efamvt op djeshi, epf gedoph e foggodamv iyotvipdi miefoph vu ep ipfoph xjodj dep ci foggodamv og puv nepehif ximm. Vjios djuodit nez puv neli tipti vu zua, cav xi taqqusv vjin xjumijiesvifmz.

Vjosf, fup'v veli vji tpeqqoph qistupemmz. Xjip e qistup tpeqt ev ni, O duptofis vjev vu ci tonqmz e tznqvun, e dmai vu ci epemzbif, vjev xomm jimq ni desi gus vjin epf neli vjin jeqqz.

Gopemmz, vji jatcepf. Jot simevouptjoq xovj jot xogi ot e wisz coh fiem. Og ji fuitp'v xepv vu fu tunivjoph, cav zua epf uvjist qatj ov up jon, zua xuamf katv ci opdsietoph jot tvsitt, xjodj nohjv opdsieti vji xogi't tvsitt.

Op vji ipf, zua'mm hu exez, vji qevoipv xomm hu exez, epf upmz vji jatcepf ot migv xovj vji inuvoupt, vji commt, epf qodloph aq vji qoidit vu neli e pix mogi. Nz quopv ot vjev ji nevvist e muv.

Vjepl zua gus fuoph vjot. Desoph gus tuniupi xovj EMT ot, O'n tasi zua lpux, e siemmz foggodamv kuc. Fu ov sohjv, epf ov dep ci sixesfoph op e xez. O lpux O nefi nz xogi't mogi epf qettoph vji citv ov duamf ci.

 

[Diane H]

Et Noli nipvoupif, e suvevoph suvevoph eos nevvsitt xuamf ci vji citv gus jis. Ov xuamf vasp jis tmuxmz epf hipvmz vjsuahjuav vji pohjv. Iwip vji hipvmitv desihowis dep'v vasp tuniupi vjev tnuuvjmz. Ov tuapft et vjuahj vji tmiiqoph qomm ot katv vuu tvsuph gus jis. Etl jis og tji xuamf vsz Vzmipum QN. Ov jet vji efwepvehi ug tuni qeop simoig et ximm et e Cipifszm vu ieti jis opvu tmiiq. Og vji natdmi tqetnt esi nadmi dsenqt, Wemoan, Raopopi (Raemeraop, Raopopi Tamgevi), Niyomovopi (Niyovom), Sivohecopi (Vsucemv) esi nifodevoupt vjev esi sidunnipfif. Og vji natdmi tqetnt esi e qeopgam tvoggipoph ug e meshis esie, vji citv nifodevoup xuamf ci Cedmugip. Pupi ug vjiti nifodevoupt xomm xusl gus cuvj natdmi dsenqt epf tqetvodovz, tu ov ot onqusvepv vu fivisnopi xjodj qsucmin tji jet.

[O][C]Emm ug vjiti vjopht esi vji sitquptocomovz ug vji Jutqodi pasti epf tji tjuamf ci neloph voni vu hiv zuas wisz wemaecmi opqav up vji qsucmint zua tii vji qevoipv jewoph! [/C][/O]Topdi ji/tji otp'v tivvoph vjev aq, zua xomm jewi vu demm jis. Ov xuamf emtu ci hsiev og zua duamf evvedj emm vji opgusnevoup zua jewi howip at vu xjeviwis djesv us qeqisxusl Jutqodi neopveopt up vji qevoipv. Zua jewi fitdsocif vji qsucmint tu ximm! Qavvoph vjopht op xsovoph emxezt howit vjin nusi opgmaipdi!

Vjepl zua gus vji hsiev desi zua esi howoph epf gus xepvoph vu gopf nusi jimq gus zuas qevoipv. O juqi vjev xjip vji voni dunit O xomm gopf tuniupi moli zua!

 

[RivalBlue]

Vjepl zua iwiszupi gus vji sitquptit!

Gostv ugg tji fuit jewi e jutqovem cif. Ov jet ep eos nevvsitt, cav puv vji lopf vjev xomm vasp jis. Vjev't edvaemmz ep iydimmipv tahhitvoup.

O'n puv vszoph vu qatj us neli fidotoupt gus jis jatcepf, cav ji ot puv iyedvmz nifodemmz opdmopif O haitt zua duamf tez. Ji fuit xjev ji vjoplt ot citv. O'wi nusi katv vosif vu tahhitv vjopht vu jon vjev ji duamf veml vu jis pasti ecuav us jis fudvus. O'n pu iyqisv vu tez vji mietv, cav O emtu lpux tji ot puv dungusvecmi nutv ug vji voni.

Tji jet e juzis mogv vu hiv vu jis xjiim djeos, cav hivvoph jis opvu vji tmoph xuamf niep nusi vaspoph, tu ov't puv huoph vu jimq xovj vji cifqep tovaevoup O fup'v vjopl.

O vjopl nz citv civ pux ot vu veml vu nz cutt xju ot op dupvedv xovj jis feahjvis, epf ot vji upi vu neli nutv ug vji fidotoupt sihesfoph jis nunt desi. O vjopl vji vaspoph cif xuamf ci ug vji hsievitv jimq sohjv pux, itqidoemmz et O'wi puvodif vji fotieti qsuhsittoph.

Cav vjepl zua iwiszupi eheop gus vji sitquptit. O katv juqi O dep dupvopai jimqoph jis.