Hey

[brooksea]

Well "Sam Adam"

PALEEZE! You just so happen to know a FAMOUS neuro in Beirut that can slow ALS!

And how can someone with ALS be "stable" for "'100 days" ?

Your next post should provide more information, explicit information if you want to be taken seriously!

Deleted the rest of what I was going to say!

PROVE YOURSELF

 

[Omar]

Hey Sam,

Last time I was in Beirut I was looking for a good Neurologist to follow up with. Since there is no ALS specialist or clinic, I have been to a Neurologist specialized in movement disorder and Parkinson disease and he told me that he already have 5 ALS patients and one of them was even able to swallow food again after the Ceftriaxone trial, thus we have agreed to go for it as well but now I have left back to the Netherlands and I may go back for a second Ceftriaxone trial. I am curious to know the name of the Neurologist then maybe I can visit him as well once I am there.

Thank you


Omar

 

[CindyM]

Sam- if you really know of some sort of treatment that helps ALS or stops it then I would like to give your the names of at least two of my Doctors who treat hundreds of patients and would jump at a cure. Why not sell to them, if you have something to sell? It seems like a much more effective marketing technique.

If you are not here to sell something, perhaps you should start by telling us how MND has affected you or someone you know. This is a great place to share concerns about the realities of this disease, and learn ways to cope with what actually happens to those who are DX'd.

It is a real disease, Sam, affecting more than the patient alone. People often feel hopeful and most are quite open-minded. But ALS marches forward regardless of what we do or think or believe. Quite a lot of people on this site have decided there is nothing wrong with accepting this reality.

If you are looking for folks who are grasping at straws you have come to the wrong place. Cindy