Arlee
Member
- Joined
- Feb 17, 2017
- Messages
- 24
- Reason
- PALS
- Diagnosis
- 11/2016
- Country
- US
- State
- USA
- City
- L.C
Hi Bruce,
Since November I have inhaled everything I can get my hands on about ALS and have held the Doctors feet to the fire for all they were worth. We have less than a handful of viable options and I would like to try all of them! Stem cell is really pricey with very little feedback on the outcomes using cord cells. Plus I have my eye on a 4 wheel drive wheelchair that costs about the same money.
The one thing that keeps screaming to me is the cannabis oil treatment... Now your talking to a guy who smoked one joint in High school and buys a 12 pack of beer every 2 to 3 years, so I'm not looking for an escape or a high. Something that will retard the progression and help me deal with the pain! "hence Colorado"
When the cramps first started I will never forget my first big one! It was the middle of the night, I woke up in so much pain I thought that I had been shot! I kept rubbing my hand on my leg looking to see where the blood was coming from! It was absolutely the worst pain I had ever experienced...
Everybody in the world has an expiration date, we don't know when ours will be but we know how (possibly) and I thank God that I have the opportunity to tell everyone That I love that I love them! Plus I have time to get rid of my stuff! I have more stuff than Fred Sanford but mine is good stuff! so I get to get rid of it on my terms and I am not leaving that burden to my family. Now if I get rid of EVERYTHING and Ive exhausted my bucket list and I am sitting around by the fire waiting on the Grimm reaper and they find a cure!! Im going to be really pissed!! Melbourne is nice, I live by the Eustis/Mount Dora area.
Since November I have inhaled everything I can get my hands on about ALS and have held the Doctors feet to the fire for all they were worth. We have less than a handful of viable options and I would like to try all of them! Stem cell is really pricey with very little feedback on the outcomes using cord cells. Plus I have my eye on a 4 wheel drive wheelchair that costs about the same money.
The one thing that keeps screaming to me is the cannabis oil treatment... Now your talking to a guy who smoked one joint in High school and buys a 12 pack of beer every 2 to 3 years, so I'm not looking for an escape or a high. Something that will retard the progression and help me deal with the pain! "hence Colorado"
When the cramps first started I will never forget my first big one! It was the middle of the night, I woke up in so much pain I thought that I had been shot! I kept rubbing my hand on my leg looking to see where the blood was coming from! It was absolutely the worst pain I had ever experienced...
Everybody in the world has an expiration date, we don't know when ours will be but we know how (possibly) and I thank God that I have the opportunity to tell everyone That I love that I love them! Plus I have time to get rid of my stuff! I have more stuff than Fred Sanford but mine is good stuff! so I get to get rid of it on my terms and I am not leaving that burden to my family. Now if I get rid of EVERYTHING and Ive exhausted my bucket list and I am sitting around by the fire waiting on the Grimm reaper and they find a cure!! Im going to be really pissed!! Melbourne is nice, I live by the Eustis/Mount Dora area.
Last edited by a moderator: