comfortable with ALS
Distinguished member
- Joined
- Sep 24, 2007
- Messages
- 111
- Reason
- Other
- Diagnosis
- n/a
- Country
- US
- State
- mi
- City
- st.clair shores
Hey guys i havet posted in a while, i wanted to give myself a break from here for a while, i was driving myself nuts. Well lets see ive been having tongue fasics now and fell 2 times this week because my left side gave out...very scary especially since i am pregnant. I had an als specialist yes tell me no als, well i want to so badly believe him but its very hard because i am constantly reminded by my symptoms. He also did my right side not left, and i told him my left side was bothering me and hopefully he will do it soon. I heard the spine is the best place to get emg? is that true? My vision is so distorted to, i no als isnt vision problems but i think als can do anything. I no ive mentioned the vision thing before but i have debrie in my eye of a 50 year old and i watched it happen when i was pregnant the first time in a circle then they went everywhere on tv,computer screen, you would have to see inside my eyes to understand what i see. I called the als nurse today and said she will let the doc no. Ok well i guess its only a matter of time before it shows up on emg. I have had 4 but they have been within 6 to 7 months which i heard you should wait at least 3 months in between so we will see... I don't think this is bfs though? what do you guys think? thanks jenny