BoxersRule
Active member
- Joined
- Feb 3, 2008
- Messages
- 37
- Reason
- Learn about ALS
- Country
- US
- State
- al
- City
- birmingham
Hi there,
I see everyone is still kicking and chatting it up here. I as well when I thought I was in impending doom. I am sure you all recall my story. I will refresh. Don't worry I will make it short.....
31 months ago I had widespread random twitching- it went away- UNFORTUNATELY it came BACK..3 months into my pregnancy. Started same as last..left thigh then over night BOOM all over. Those that know me know I totally FREAKED OUT! I sought out a Neurologist. Cheif of Neurology and expert EMG'er. I got lucky no wait. The sad part is...when I called to make an appt. I was in SUCH hysterics that the nurse put me on hold so she could ask the doc if she could just see me today because she was worried about my mental stability and being pregnant.
p.s. During this time I lost my husband to a divorce due to my insecure anxiety and health worries. What I feel is real but he couldnt take my sulking every day. So this was and is serious to me.
That day I went in...and they did a random guess you call it..physical strength test etc. I passed with flying colors....reflexes normal...equal you know the game. No EMG. My reassurance lasted about a month..I called again- begging can atleast your NP see me and do another neuro exam. I got in a few days later. Unbeknowing (is that even a word) to me...they set me up for a EMG. They did not tell me until they came to get me for it. The Neuro said I would NOT get past this until I had a EMG and she could explain and show me my muscle activity etc. (the neuro actually did this on her lunch break for me)
That exam room never felt so cold and that rumbling of the EMG machine is a sound I will never forget and I think of every time I hear my computer fan come on lol... Well 14 sticks and ten muscles were tested. I am not sure how long it took it felt like eternity. I know that she did a few insertions in the same spot however I dont know how to explain that but she told me it was like a eye ball on the needle and it was just looking in a different direction each time. Even in the same spot. Anyhow...EMG showed nothing..no psw's no fibs, nothing abnormal just one FASICULATION that was caused when she had me flex my calve muscle. She said...look @ the monitor. The fasciculation was clean with no waves blah blah blah....
Anyhow she delcared I had BFS and NO ALS and sent me on my way. I asked about her creddibility and experience with ALS and she said she had more than her share of patients she had diagnosed in her years of neurology. She also showed me her card and she was a teacher of EMG- ok whatever you call those people but it said EXPERT ELECTROMAMOGRAPHER something like that.. lol
Well I had the baby July 2, 2008. Beautiful baby girl. Amberlyn Victoria Graves. I had a horrrrrrrid delivery. Induction, 20 plus hours of labor and 3 hours of pushing and EMERGENCY C section with Epi running OUT and I had to have a spinal block *saddle block* unfortunately some how my WHOLE body ended up going numb..It was scary I couldnt feel my chest but it was all worth it. Fast forward..I am still 28 years old and I still have the stupid twitching going on. I have no weakness I have fully recovered from my c section ofcourse I am still sore but nothing manifested from that.
Lately I keep thinking I am speaking funny. I feel like I am going to get "STUCK" on my words but I never do. I am able to spit, cough, YELL, tent my cheeks, move my tongue back n forth fastly talk fast etc . Its just when I think before I speak I freak out like its going to not work.
Also, I experienced a swollen tongue during pregnancy due to dehydration. WOW you know that scared the HELL out of me when I was talking funny.
I worry about my tongue now but when I look in the mirror I see a fat pink tongue. I am no doctor so I dont know what atrophy looks like but I dont see any thing unusual. I hope I am just freaking myself out again.
Help me get off this train before it takes off again. I am really at one with myself and I HAD put ALS aside. Now Im back to this "tongue" thing. I occasionally get a ZAP or tingly feeling on it but I spoke to the doctor and she said that could be from my medication CLONAPIN which is a side effect listed on the medicine info.
Yall get me off this bus please.
I still think of you guys and pray for you every day.
With Love, DeeDee:mrgreen:
I see everyone is still kicking and chatting it up here. I as well when I thought I was in impending doom. I am sure you all recall my story. I will refresh. Don't worry I will make it short.....
31 months ago I had widespread random twitching- it went away- UNFORTUNATELY it came BACK..3 months into my pregnancy. Started same as last..left thigh then over night BOOM all over. Those that know me know I totally FREAKED OUT! I sought out a Neurologist. Cheif of Neurology and expert EMG'er. I got lucky no wait. The sad part is...when I called to make an appt. I was in SUCH hysterics that the nurse put me on hold so she could ask the doc if she could just see me today because she was worried about my mental stability and being pregnant.
p.s. During this time I lost my husband to a divorce due to my insecure anxiety and health worries. What I feel is real but he couldnt take my sulking every day. So this was and is serious to me.
That day I went in...and they did a random guess you call it..physical strength test etc. I passed with flying colors....reflexes normal...equal you know the game. No EMG. My reassurance lasted about a month..I called again- begging can atleast your NP see me and do another neuro exam. I got in a few days later. Unbeknowing (is that even a word) to me...they set me up for a EMG. They did not tell me until they came to get me for it. The Neuro said I would NOT get past this until I had a EMG and she could explain and show me my muscle activity etc. (the neuro actually did this on her lunch break for me)
That exam room never felt so cold and that rumbling of the EMG machine is a sound I will never forget and I think of every time I hear my computer fan come on lol... Well 14 sticks and ten muscles were tested. I am not sure how long it took it felt like eternity. I know that she did a few insertions in the same spot however I dont know how to explain that but she told me it was like a eye ball on the needle and it was just looking in a different direction each time. Even in the same spot. Anyhow...EMG showed nothing..no psw's no fibs, nothing abnormal just one FASICULATION that was caused when she had me flex my calve muscle. She said...look @ the monitor. The fasciculation was clean with no waves blah blah blah....
Anyhow she delcared I had BFS and NO ALS and sent me on my way. I asked about her creddibility and experience with ALS and she said she had more than her share of patients she had diagnosed in her years of neurology. She also showed me her card and she was a teacher of EMG- ok whatever you call those people but it said EXPERT ELECTROMAMOGRAPHER something like that.. lol
Well I had the baby July 2, 2008. Beautiful baby girl. Amberlyn Victoria Graves. I had a horrrrrrrid delivery. Induction, 20 plus hours of labor and 3 hours of pushing and EMERGENCY C section with Epi running OUT and I had to have a spinal block *saddle block* unfortunately some how my WHOLE body ended up going numb..It was scary I couldnt feel my chest but it was all worth it. Fast forward..I am still 28 years old and I still have the stupid twitching going on. I have no weakness I have fully recovered from my c section ofcourse I am still sore but nothing manifested from that.
Lately I keep thinking I am speaking funny. I feel like I am going to get "STUCK" on my words but I never do. I am able to spit, cough, YELL, tent my cheeks, move my tongue back n forth fastly talk fast etc . Its just when I think before I speak I freak out like its going to not work.
Also, I experienced a swollen tongue during pregnancy due to dehydration. WOW you know that scared the HELL out of me when I was talking funny.
I worry about my tongue now but when I look in the mirror I see a fat pink tongue. I am no doctor so I dont know what atrophy looks like but I dont see any thing unusual. I hope I am just freaking myself out again.
Help me get off this train before it takes off again. I am really at one with myself and I HAD put ALS aside. Now Im back to this "tongue" thing. I occasionally get a ZAP or tingly feeling on it but I spoke to the doctor and she said that could be from my medication CLONAPIN which is a side effect listed on the medicine info.
Yall get me off this bus please.
I still think of you guys and pray for you every day.
With Love, DeeDee:mrgreen:
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