Brad0608
Member
- Joined
- Jul 27, 2015
- Messages
- 13
- Reason
- Other
- Diagnosis
- 05/2013
- Country
- US
- State
- IL
- City
- Channahon
An official diagnosis came 2 Monday ago I guess my story begins in October 2012 when I woke up with body wide twitching and a burning sensation threw out my body I was sick with flu like symptoms right before that like everyone else went to doctor google so scared myself with als months went buy no weakness was able to shake the scare plus after my emg /NVC doc told me you have nothing to worry about so fast forward to September this year my voice was horsed for a couple of weeks saw my GP saw fasciculations on tounge recommended a neuromuscular specialist downtown ran a boat load of test came back with the 3 scariest letters in the alphabet ALS now 35 with a 6 and a 3 year old only positive note besides my face and tounge every thing else looked good he said so talking is an issue my my arms legs and back we're alright for now but tounge is scary to look at but I can still whisper l love you to my daughter and son my daughter trying to understand but I really trying to shelter her from the death conversation that's my story