Faith27
Member
- Joined
- Jul 22, 2016
- Messages
- 11
- Reason
- Lost a loved one
- Diagnosis
- 00/0000
- Country
- US
- State
- FL
- City
- Miami
Hi
I haven’t been here in a while, to keep story short my grandmother died at 72 with bulbar, 4 of her brothers as well around same age. My mother died at 67 diagnosed at 65 and a cousin of hers diagnosed at 68 died at 70. I’m 39 years old and since she was diagnosed I started twitching everywhere not a big deal as I’m sure is anxiety. But recently about 5 weeks ago my left foot has been twitching nonstop and it feels as if I’m standing in top of a vibrating object, ad to that pain and cramping of the toes and arch of foot. I have an appt with Benatar on Tuesday but I’m so scared. I have three beautiful children 6 yrs, 4 yrs and 4 months (last one unexpected as my husband had undergone vasectomy and it failed us) but we were blessed with our baby girl. Is it normal for this disease to present almost 3 decades early? No one from my generation in the family has had it, I have much older sisters who are fine and my mother has two sisters which up until now are fine.
I haven’t been here in a while, to keep story short my grandmother died at 72 with bulbar, 4 of her brothers as well around same age. My mother died at 67 diagnosed at 65 and a cousin of hers diagnosed at 68 died at 70. I’m 39 years old and since she was diagnosed I started twitching everywhere not a big deal as I’m sure is anxiety. But recently about 5 weeks ago my left foot has been twitching nonstop and it feels as if I’m standing in top of a vibrating object, ad to that pain and cramping of the toes and arch of foot. I have an appt with Benatar on Tuesday but I’m so scared. I have three beautiful children 6 yrs, 4 yrs and 4 months (last one unexpected as my husband had undergone vasectomy and it failed us) but we were blessed with our baby girl. Is it normal for this disease to present almost 3 decades early? No one from my generation in the family has had it, I have much older sisters who are fine and my mother has two sisters which up until now are fine.