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CRF8

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Loved one DX
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my wife, her sister & I recently submitted blood samples & a survey related to ALS research. If anyone else would like to donate, here's the info...

-- Sandra Donkervoort, MS
Genetic Counselor
Neuromuscular Disorders Program
[email protected]
Northwestern University Feinberg School of Medicine
300 East Superior Street
Tarry Building 13-715
Chicago, IL 60611 Phone: 312-503-0154
Fax: 312-908-0865
www.neurogenetics.northwestern.edu
 

Jennifer51

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PALS
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UK
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People in the uk can also do it, contact the mnd assoc.org or dendron (dementia and neuro degenerative diseases) We have done it...very simple and they sent someone to our home to do it, so not at all difficult.
 

CRF8

Active member
Joined
Dec 3, 2008
Messages
70
Reason
Loved one DX
Diagnosis
11/2008
Country
US
State
FL
City
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heres another

ALS Gene Study
Updated February 2009

Researchers at the University of Massachusetts Medical Center are seeking individuals with and without ALS (amyotrophic lateral sclerosis) for participation in an ALS Gene Study conducted by Dr. Robert H. Brown, Jr. We have been conducting this research for several years but have recently relocated from Massachusetts General Hospital to the University of Massachusetts Medical Center.

The purpose of this study is to search for genes and environmental factors that may cause or increase the risk of developing ALS. This study includes individuals with either familial or sporadic ALS and possibly some family members. We are also looking for unrelated, unaffected individuals as population controls, such as spouses or friend. Participation requires a one-time blood sample (or sometimes a saliva sample), completion of questionnaires about environmental and general medical/family history, and permission to review medical records pertaining to the onset and progression of the disease for those with ALS.

Part of the entry criteria is as follows:

Be diagnosed with ALS (or be an unaffected, unrelated spouse or population control)
Be willing to give a blood sample (or in some cases a saliva sample)
Be willing to complete questionnaires about your environment and your family/medical history
To find out more about this study, please contact:

Diane McKenna-Yasek, RN, BSN
Neuromuscular Research Nurse
Department of Neurology
U Mass Medical School, Rm S5-710
55 Lake Avenue North
Worcester, MA 01655
Ph: (508) 856-4697
Fax: (508) 856-4675
[email protected]

There are no costs to participate and travel to Worcester is not necessary. Arrangements can be made to have blood samples drawn locally.
 
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