Jdeanda
Member
- Joined
- Jul 30, 2021
- Messages
- 22
- Reason
- Lost a loved one
- Diagnosis
- 07/2021
- Country
- US
- State
- TX
- City
- corpus christi
Question, my dad has ALS bulbar onset for about 5 months already. He’s lost tons of weight and just had a peg tube placed last Thursday. Since we started feeding through the tube 4-6 formula bottles a day he had started feeling like he had life again. We were all so happy knowing he’s getting the nutrients and all meds that he needed. However we noticed he had been getting up a lot at night to use the RR. So we decided to stop feeding after 6 and he could still eat a few bites of cake or something like that. Well it’s gotten to the point where he doesn’t want to go anywhere and he can’t sleep cuz he always has the urge to pee. He goes all the time and he says it’s just a little trickle but the urge is there. He didn’t sleep last night because of this. Is this another symptom of ALS ?