JeremyK
New member
- Joined
- Apr 13, 2019
- Messages
- 5
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- UT
- City
- Provo
Thank you for allowing me to ask a question to the community. I've read the "important" highlighted posts, and found them well written and helpful.
In January, I started to experience random "hypnic jerks" while drifting off to sleep. In February, they became so severe that I couldn't sleep for a few days. Every time I was about to fall asleep I would be jolted awake.
In this tortured state (please forgive me) I checked with Dr. Google.
Fear/anxiety cycle started, along with daytime fasciculations, more nighttime twitching in random locations, and most troubling to me, I recently noticed a very twitchy tongue with white spots, and what looks like lesions or atrophy or perhaps geographic tongue. My tongue twitches/bubbles a lot; seen but not felt.
I would be most grateful if you would answer a few questions for me:
(1) Tongue worries we most. On the sticky it say's atrophy is a frequent early symptom, generally speaking. But when speaking of the tongue, the community say's that if you can speak/swallow you don't have tongue atrophy. Can you clarify for me? If I can speak, swallow, etc, should I stop worrying about a strange looking, twitchy tongue in terms of ALS?
(2) Hypnic jerks as onset symptom?
(3) 6% weight loss in one month? Increased spasticity?
(4) Anything else I should consider?
I plan to see a neuro in two weeks. Thanks in advance for any guidance. You're generous folks.
In January, I started to experience random "hypnic jerks" while drifting off to sleep. In February, they became so severe that I couldn't sleep for a few days. Every time I was about to fall asleep I would be jolted awake.
In this tortured state (please forgive me) I checked with Dr. Google.
Fear/anxiety cycle started, along with daytime fasciculations, more nighttime twitching in random locations, and most troubling to me, I recently noticed a very twitchy tongue with white spots, and what looks like lesions or atrophy or perhaps geographic tongue. My tongue twitches/bubbles a lot; seen but not felt.
I would be most grateful if you would answer a few questions for me:
(1) Tongue worries we most. On the sticky it say's atrophy is a frequent early symptom, generally speaking. But when speaking of the tongue, the community say's that if you can speak/swallow you don't have tongue atrophy. Can you clarify for me? If I can speak, swallow, etc, should I stop worrying about a strange looking, twitchy tongue in terms of ALS?
(2) Hypnic jerks as onset symptom?
(3) 6% weight loss in one month? Increased spasticity?
(4) Anything else I should consider?
I plan to see a neuro in two weeks. Thanks in advance for any guidance. You're generous folks.