ScotBoy
New member
- Joined
- Apr 12, 2021
- Messages
- 9
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
Good afternoon All,
Thank you to the Moderators, PALS and CALS for allowing me to ask these questions. This is my first post on the sight although I have been reading a lot of threads since the beginning of Feb when my issues began.
I have read the stickies which were incredible helpful and reassuring at the start while I was self diagnosing myself in between GP/Hospital appointments (stopped me from posting sooner than this) however I feel the progression in my symptoms now fall outside that info and if possible would love some real life responses to them. I fully understand this is not a medical sight and I am in the middle of neurological testing by professionals but I haven't had any results (other than blood and Lyme tests) as yet.
I have been experiencing muscle tightness, cramps and twitching mainly focussed in my right foot, calf and quad, although I have sporadic episodes in all other limbs, throat and torso. Until now I could not state I had muscle weakness. There was some other sensation changes in my hands and feet which as I said after reading the stickies calmed my fears of MND/ALS
The concern I have now is raising my left shoulder has become very laboured, I get to a certain point and it doesn't want to go further, after a few attempts I can eventually get it above my head. After I have had my arm above my head and lower it I get 3 or 4 sudden jerks, also if I have my arm at shoulder level with my elbow bent I have uncontrollable jerks until I move the arm. Is this considered "progression" in terms of ALS/MND and has anyone had similar experiences with issues presenting in different locations
Also I received a phone call from my GP last week asking me to make an appointment to go over my NCS/EMG results. Is this common practice? as everything up to this point has been sent to me in letter form which has got me very concerned and anxious.
From the time I was referred to the Neurologist I have developed anxiety and understand that some of the symptoms are being caused/magnified by this but as symptoms started before the anxiety I don't believe this is the only issue.
Thank you to the people who take the time to read this. Any help will be greatly received
Thank you to the Moderators, PALS and CALS for allowing me to ask these questions. This is my first post on the sight although I have been reading a lot of threads since the beginning of Feb when my issues began.
I have read the stickies which were incredible helpful and reassuring at the start while I was self diagnosing myself in between GP/Hospital appointments (stopped me from posting sooner than this) however I feel the progression in my symptoms now fall outside that info and if possible would love some real life responses to them. I fully understand this is not a medical sight and I am in the middle of neurological testing by professionals but I haven't had any results (other than blood and Lyme tests) as yet.
I have been experiencing muscle tightness, cramps and twitching mainly focussed in my right foot, calf and quad, although I have sporadic episodes in all other limbs, throat and torso. Until now I could not state I had muscle weakness. There was some other sensation changes in my hands and feet which as I said after reading the stickies calmed my fears of MND/ALS
The concern I have now is raising my left shoulder has become very laboured, I get to a certain point and it doesn't want to go further, after a few attempts I can eventually get it above my head. After I have had my arm above my head and lower it I get 3 or 4 sudden jerks, also if I have my arm at shoulder level with my elbow bent I have uncontrollable jerks until I move the arm. Is this considered "progression" in terms of ALS/MND and has anyone had similar experiences with issues presenting in different locations
Also I received a phone call from my GP last week asking me to make an appointment to go over my NCS/EMG results. Is this common practice? as everything up to this point has been sent to me in letter form which has got me very concerned and anxious.
From the time I was referred to the Neurologist I have developed anxiety and understand that some of the symptoms are being caused/magnified by this but as symptoms started before the anxiety I don't believe this is the only issue.
Thank you to the people who take the time to read this. Any help will be greatly received