girlypop2000
New member
- Joined
- Jan 22, 2022
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- CA
- State
- ON
Hi everyone!
I have read the pre-post discussion and want to acknowledge that before I continue with this thread! There was a lot of good information there and I am very grateful.
I am 21F and concerned about a possible ALS diagnosis (or something else?)
For some background, I have really aggressive ulcerative colitis and was put on immunosuppressants about a year ago due to internal bleeding and needing blood transfusions a lot and there are very rare side effects of demyelination and peripheral neuropathies.
In the last few weeks I have noticed slight weakness in my right hand (I can still do things with it like open a ziplock bag and put a key in a lock and grip a pen and type on a computer with basically no issues but sometimes it feels like its a lot more difficult to get the movements out, its more when i'm focused on it) and I also feel like my right leg is kinda shaky sometimes. I can still lift myself up on tiptoes and onto my heels with no issues but I find as the day goes on that my right leg feels weaker (kind of like my shin is shaking when I walk but not when I am sitting down). I was hoping to get some people who know a lot about the disease to give me their opinions on my symptoms. I am worried sick as I have other medical issues I'm currently contending with (I need to get ostomy surgery within the next few months) and I am extremely overwhelmed by the possibility of an ALS diagnosis on top of everything else. I have an MRI scheduled for Monday (in 2 days) and am hoping to get an EMG as soon as possible, so I will check in then with the results, I just wanted to open this thread to anyone who may have any knowledge on my symptoms. Its hard to get in touch with a neurologist because of COVID so I am currently waiting and worrying myself into an anxious mess.
Also, for anyone in Canada (specifically Ontario and Quebec) have you heard of any private EMG clinics that specialize in ALS that you could point me in the direction of? I just need answers as soon as possible.
I appreciate any information/input you can give me, and as always, I am wishing everyone the very best.
I have read the pre-post discussion and want to acknowledge that before I continue with this thread! There was a lot of good information there and I am very grateful.
I am 21F and concerned about a possible ALS diagnosis (or something else?)
For some background, I have really aggressive ulcerative colitis and was put on immunosuppressants about a year ago due to internal bleeding and needing blood transfusions a lot and there are very rare side effects of demyelination and peripheral neuropathies.
In the last few weeks I have noticed slight weakness in my right hand (I can still do things with it like open a ziplock bag and put a key in a lock and grip a pen and type on a computer with basically no issues but sometimes it feels like its a lot more difficult to get the movements out, its more when i'm focused on it) and I also feel like my right leg is kinda shaky sometimes. I can still lift myself up on tiptoes and onto my heels with no issues but I find as the day goes on that my right leg feels weaker (kind of like my shin is shaking when I walk but not when I am sitting down). I was hoping to get some people who know a lot about the disease to give me their opinions on my symptoms. I am worried sick as I have other medical issues I'm currently contending with (I need to get ostomy surgery within the next few months) and I am extremely overwhelmed by the possibility of an ALS diagnosis on top of everything else. I have an MRI scheduled for Monday (in 2 days) and am hoping to get an EMG as soon as possible, so I will check in then with the results, I just wanted to open this thread to anyone who may have any knowledge on my symptoms. Its hard to get in touch with a neurologist because of COVID so I am currently waiting and worrying myself into an anxious mess.
Also, for anyone in Canada (specifically Ontario and Quebec) have you heard of any private EMG clinics that specialize in ALS that you could point me in the direction of? I just need answers as soon as possible.
I appreciate any information/input you can give me, and as always, I am wishing everyone the very best.