Pajamaguy2828
New member
- Joined
- May 11, 2020
- Messages
- 1
- Reason
- CALS
- Diagnosis
- 11/2019
- Country
- US
- State
- CA
- City
- Valley
Hi All
This is my first post and thank you for a place to get informed. My MIL was diagnosedin Nov 2019 and has had symptoms for more than a year. After the diagnosis (while relieving) started a new journey of care. Lately my wife and I have had difficulty in her Mom asking and accepting any help she may need to perform basic personal tasks like eating and the restroom.She has always been a very independent woman who took care of her family and has had trouble with any help we offer because she feels like a burden. Her kids (2 are nurses) and their spouses are trying to take care of her ourselves because she doesn’t have the financial flexibility for outside help. Everyone is trying to be patient but our lack of experience with ALS feels like we do everything wrong. Her hand grip and walking strength is declining and swallowing and talking are lessening as well. We are looking for ways or phrases that tend to resonate and be effective in asking a PALS be more receptive to accept help from their children. Thank you
This is my first post and thank you for a place to get informed. My MIL was diagnosedin Nov 2019 and has had symptoms for more than a year. After the diagnosis (while relieving) started a new journey of care. Lately my wife and I have had difficulty in her Mom asking and accepting any help she may need to perform basic personal tasks like eating and the restroom.She has always been a very independent woman who took care of her family and has had trouble with any help we offer because she feels like a burden. Her kids (2 are nurses) and their spouses are trying to take care of her ourselves because she doesn’t have the financial flexibility for outside help. Everyone is trying to be patient but our lack of experience with ALS feels like we do everything wrong. Her hand grip and walking strength is declining and swallowing and talking are lessening as well. We are looking for ways or phrases that tend to resonate and be effective in asking a PALS be more receptive to accept help from their children. Thank you