hoss1980
Member
- Joined
- Jun 5, 2019
- Messages
- 15
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- TN
- City
- Knoxville
Hi everyone,
First off, thanks SO MUCH for all the information here. You guys are really knowledgable. Also, I have read the common thread for the newcomers ("Read before you post").
I'm 33, male, no family history of ALS. 8 months ago, I felt sudden "weakness" in the back of neck and rushed to the ER. They tested for heart or brain problems, all of which were ruled out. For weeks, I was dizzy because of the neck issue and had pretty bad tingling in my hands and feet (which I know point away from ALS). I still have weird feelings in my neck. Things like heaviness in the back of my tongue. No tongue twitches, speech problems (I teach at a university), or swallowing issues, though. I have a few questions; 1) Can the sudden neck weakness I experienced be a sign of the bulbar onset? My neck still feels weak at times. 2) Is 8 months enough for any case of ALS to progress?
Also, about 2 weeks ago, I started having weird muscles pulses; one pulse in random places (e.g., calves or arms) and that's it. I get them in my left eye, head, neck, hands, thighs, calves, and feet. I don't feel these pulses when I'm sleeping. 3) Does anyone think these muscle pulses might be related to my neck issues? I also get random sharp pain in various parts of my body (which, again, I think point away from ALS). 4) I have heard that ALS twitching is highly focalized and widespread and suddenly appearing twitching points away from ALS. 4) Is this correct? 5) Is it rare to have twitches above neck with ALS?
I have seen my GP who thinks all this is caused by anxiety. I have had severe health anxiety for the past 8-9 months. Therefore, she refuses to refer me to a neurologist.
First off, thanks SO MUCH for all the information here. You guys are really knowledgable. Also, I have read the common thread for the newcomers ("Read before you post").
I'm 33, male, no family history of ALS. 8 months ago, I felt sudden "weakness" in the back of neck and rushed to the ER. They tested for heart or brain problems, all of which were ruled out. For weeks, I was dizzy because of the neck issue and had pretty bad tingling in my hands and feet (which I know point away from ALS). I still have weird feelings in my neck. Things like heaviness in the back of my tongue. No tongue twitches, speech problems (I teach at a university), or swallowing issues, though. I have a few questions; 1) Can the sudden neck weakness I experienced be a sign of the bulbar onset? My neck still feels weak at times. 2) Is 8 months enough for any case of ALS to progress?
Also, about 2 weeks ago, I started having weird muscles pulses; one pulse in random places (e.g., calves or arms) and that's it. I get them in my left eye, head, neck, hands, thighs, calves, and feet. I don't feel these pulses when I'm sleeping. 3) Does anyone think these muscle pulses might be related to my neck issues? I also get random sharp pain in various parts of my body (which, again, I think point away from ALS). 4) I have heard that ALS twitching is highly focalized and widespread and suddenly appearing twitching points away from ALS. 4) Is this correct? 5) Is it rare to have twitches above neck with ALS?
I have seen my GP who thinks all this is caused by anxiety. I have had severe health anxiety for the past 8-9 months. Therefore, she refuses to refer me to a neurologist.