Help, very unusual symptoms

[rebeccab_brown]

Hello all,
I am very new to this but extremely terrified. My situation is odd. I had breast implants a year ago and 3 weeks ago the muscle in one side of the left breast was aching. I pushed the breast into a bra to try and stop the pain and got a strange pain in my hand that was like a shooting pain and my pinky went numb. I had an ultrasound on the breast and the brachial plexus and there was nothing abnormal noted and the ultrasound was fine.
2 days after that I had pins and needles in both legs and one side of my face went numb. I had terrible vertigo and couldn’t stop vomiting so went to the emergency room and they did a neurological exam, very basic one and sent me home to have and mri with my doctor after ruling out a stroke or heart attack.
Last weekend I started having these weird muscle twitches everywhere, my hands, feet, face, stomach. They are all over and when I sleep I get this burning sensation in my legs. My joints ache and feel like they are burning at times. I now have a burning pain in my neck on the left side and still can’t use the pinky or my index finger on the left side so I can’t do things like shave my legs which sounds strange but it requires a certain movement.
I also have a sore throat and it feels weird when I swallow and when I swallow my neck hurts. When I wake up I feel like I have a headache as I seem to be struggling to sleep, maybe due to anxiety, but also the twitching. The burning sensation seems to also have spread to my thighs now and seems to be getting worse. My Dr wants me to be tested for ALS with a neurologist, which I will do. But to me this seems like something else. It’s not MS as my mri has ruled that out and mri is completely normal. And it’s not a vitamin defiency or viral infection based on my blood work.
Does any of this seem like it is related to ALS?

It also seems to be hard to hold my neck in certain positions which I think is causing the pain in my neck. But I can hold my head up it’s not like it has dropped it’s just causing pain to hold it up.

 

[Nikki J]

It certainly doesn’t sound like any ALS onset I have ever heard of. I am amazed your pcp brought it up Your symptoms are virtually all sensory and ALS is a motor disease. The hallmark is clinical weakness ( failure) which you do not report. I expect the neurologist will be reassuring

 

[lgelb]

If the breast US did not include an exam by the surgeon who did the implants, that would be my next step. If it did, I'd ask about a rheumatology referral.

I agree that this doesn't sound like ALS at all.

 

[rebeccab_brown]

Thankyou so much for the response

 

[rebeccab_brown]

Hello all,
Just a question, can the soft palette be the first thing affected in ALS? There is not much information around any of this on the internet as it appears it’s one of the later stages.

 

[lgelb]

I have never heard of that. That would be a very isolated muscle group, in the midst of other muscles that affect swallowing and speech. So we often see swallowing and speech in close proximity affected in bulbar onset or limb extension to bulbar, which you have not described at all. By the time ALS would affect one or two muscles in that area, it would have affected others, with visible, not subtle results, that send people to a doctor in the first place.

 

[rebeccab_brown]

Thankyou for your response. I greatly appreciate all your help provided in this forum.