DreamsEnd
Distinguished member
- Joined
- Jan 24, 2014
- Messages
- 449
- Reason
- Lost a loved one
- Diagnosis
- 01/2014
- Country
- US
- State
- AZ
- City
- Cottonwood
:sad:
I am at a total loss. My PALS does very well during the day, although he can't use arms or hands so I do everything for him, but he's sweet, funny, accepting and polite. At night it's as if I have a different husband. We are NOT getting any sleep and I am at the end of my rope. This has been going on for months but getting worse. He needs help anywhere from 3-8 times a night and the reasons keep changing! It was frequent urination so we got Detrol then condom caths. Then in his top of the line hospital bed (moved there next to mine because of restless sleep) he can't get comfortable (feels trapped or shoulder/hip pain) so he's been sleeping in his recliner. Bipap not comfortable - finally got settings changed! Mouth too dry, leg spasms, too hot, too cold, Got backlofen for spasms, Tylenol PM for sleep, Celebrex for pain. Then last night it was "as if a nail was being driven up his tailbone" so back to bed. Maybe for an hour. He hurt everywhere, dry mouth, could handle bipap for only a few hours at beginning of night. In hospital bed, he couldn't get comfortable, so back to chair after about half and hour. He whines the whole time at night, it's like an overtired 4 year old. Never during the day.
Help? Suggestions? Home health nurse on vacation. Respite only available during the day, it's nights that I/we need the help. Sorry this is so rambling - I'm exhausted, lost 10 lbs I can't aford to lose and my BP thru the roof.
Sherry
I am at a total loss. My PALS does very well during the day, although he can't use arms or hands so I do everything for him, but he's sweet, funny, accepting and polite. At night it's as if I have a different husband. We are NOT getting any sleep and I am at the end of my rope. This has been going on for months but getting worse. He needs help anywhere from 3-8 times a night and the reasons keep changing! It was frequent urination so we got Detrol then condom caths. Then in his top of the line hospital bed (moved there next to mine because of restless sleep) he can't get comfortable (feels trapped or shoulder/hip pain) so he's been sleeping in his recliner. Bipap not comfortable - finally got settings changed! Mouth too dry, leg spasms, too hot, too cold, Got backlofen for spasms, Tylenol PM for sleep, Celebrex for pain. Then last night it was "as if a nail was being driven up his tailbone" so back to bed. Maybe for an hour. He hurt everywhere, dry mouth, could handle bipap for only a few hours at beginning of night. In hospital bed, he couldn't get comfortable, so back to chair after about half and hour. He whines the whole time at night, it's like an overtired 4 year old. Never during the day.
Help? Suggestions? Home health nurse on vacation. Respite only available during the day, it's nights that I/we need the help. Sorry this is so rambling - I'm exhausted, lost 10 lbs I can't aford to lose and my BP thru the roof.
Sherry