My father in law was diagnosed in December 2006, but started showing symptons in July last year (was dragging his one leg). Now he has lost the use of his legs, and his one arm is starting to go.
Big problem - we live in South Africa, so feel really helpless.
From conversations recently it sounds as though my father in law has realised what is going to happen to him, and he is very angry at the moment (100% understandable).
We really want to buy them a computer with skype so at least he'll be able to see us, and he can learn to surf the net, and communicate if his vocal chords go while he still has some movement in his arms.
The big problems are:
1. I need to find a hospice or caregivers group with volunteers who can go round and help him, while at the same time give my mom in law a break - can you put me in touch with an organisation in France?
2. What can we do to assist him, being so far away? We've suggested they come here on an extended holiday while he can still breathe without assistance. The change of scenery could help? Also we can spend some quality time with them. Is this a good idea? Please could someone give me ideas of how we can help.
Many thanks
Jan
Big problem - we live in South Africa, so feel really helpless.
From conversations recently it sounds as though my father in law has realised what is going to happen to him, and he is very angry at the moment (100% understandable).
We really want to buy them a computer with skype so at least he'll be able to see us, and he can learn to surf the net, and communicate if his vocal chords go while he still has some movement in his arms.
The big problems are:
1. I need to find a hospice or caregivers group with volunteers who can go round and help him, while at the same time give my mom in law a break - can you put me in touch with an organisation in France?
2. What can we do to assist him, being so far away? We've suggested they come here on an extended holiday while he can still breathe without assistance. The change of scenery could help? Also we can spend some quality time with them. Is this a good idea? Please could someone give me ideas of how we can help.
Many thanks
Jan