olly
Extremely helpful member
- Joined
- Jan 10, 2008
- Messages
- 2,743
- Reason
- PALS
- Diagnosis
- 11/2007
- Country
- uk
- State
- uk
- City
- uk
hi,my name is caroline and i live in the uk . ive been ill for 8yrs . i was 31 when ibegan with severe muscle spasms in my legs,fatigue,hyperactive reflexes and twitchings that come and go,also alimb or oneside of my body twitches (clonus/myoclonus)mri was normal, ithought it was ms for many years.2yrs ago my health started to go down hill.muscle weakness of my hip girdle and legs is bad(walking,climbing stairs,getting out of a chair ,even standing).my balance is terrible and im getting more and more fatigued on a daily basis,i also have bad insomnia. 1yr ago i started with minor problems swallowing and my speech is slurring more. ive had hypotension with some blackouts and despite a blood test showing my salt levels were ok my neuro said i need to increase my salt(looked on webb and said mnd effects pottasium and sodium channels) i had another mri done a yearago was ok,had tests done for other stuff plus genetic tests all ok. last year during a neuro exam found i had loss of muscle tone(hypotonicity)is it definitly a lmn sign? if so i have umn and lmn signs.no atrophy as i am aware of but i have lost over a 1stone in past 2 months.my shoulder joints are boney and past month are in pain and my right hand has got worse with dropping things and cramp in it if i use it too much.my neuro said last november theres worse things that dont show up on a mri,there is definitly something wrong but stay posotive.(yeh right!).i know he suspects mnd because he said it is something effecting my mns but he wont say what.igo back in april and im going to ask for emg .does anything ring a bell?.is hypotonia a definite lmn symptom? if i have spasms,hyper reflexes and hypotonia in a limb is it u+l mnsymptoms combined?(a clinical d iognostic factor in als
i cant understand 2 contradictory symptoms in my legs otherewise.i need closure to this im tired and need help and support.please help if you can (only those with a diagnosed and good knowledge to reply) also considering it could be pls(do you get hypotonia with pls?)
i cant understand 2 contradictory symptoms in my legs otherewise.i need closure to this im tired and need help and support.please help if you can (only those with a diagnosed and good knowledge to reply) also considering it could be pls(do you get hypotonia with pls?)