ianjudd
New member
- Joined
- Jul 19, 2008
- Messages
- 3
- Reason
- Loved one DX
- Diagnosis
- 01/2008
- Country
- uk
- State
- England
- City
- essex
hello all
My father has been diagnosed with the rare MND condition which is called 'flail arm' syndrome or 'man in a barrell'.
I live in Essex England and am wondering if there are any other out there in the world who have been diagnosed with this rare condition because the specialists in England really do not know a lot about this.
If there is any one who knows about this condition i would be very happy to get in contact with as just to find out what make their life easier.
Many thanks IAN
My father has been diagnosed with the rare MND condition which is called 'flail arm' syndrome or 'man in a barrell'.
I live in Essex England and am wondering if there are any other out there in the world who have been diagnosed with this rare condition because the specialists in England really do not know a lot about this.
If there is any one who knows about this condition i would be very happy to get in contact with as just to find out what make their life easier.
Many thanks IAN