Hopeas92
New member
- Joined
- Sep 24, 2022
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
- State
- UK
Hello everyone,
First, I would like to thank you all in advace for taking the time to read through my situation and advice me, if possible. My heart goes to all of you who are in here, no matter whats your circumastances are cos Its hard!
I just wanted some advice from people who are in this as they might have a better idea on what it is happening and/or if they can at least relate to my situation at all (given this all covid thing going on)
I started having weird symptons since Mid May which made me think of the worst and cant put my mind at ease...
I started off having upper back pain, off balance sensation and horrible and CONSTANT tingling and pind and needles sensation in all my 4 limbs from the first time in morning till bed time which improved only with walking or moving.
It lasted for about 2 months but I was still able to work and do my things somehow.
Since August, the pin and needles sensation stopped but I started noticing more worried symptoms : started feeling weak especially when climbing stars or riding my bike for a little while or walking for a long distance and my right arm has difficult holding my phone for a while or typing and writing as my right hand constantly get all numb and shaky and my right forearm muscles and chest start twitching as if they are suffering, joints in my shoulders, knees and wrists make a cracking sound while moving and thumbs in my hands constantly get locked up.
Alongside all this, its been 3 months that my bowel stopped working as usual (its really hard to go to toilet and get always constipated ) and my period stopped as well .
I checked in with my GP and got different exams: MRIs of my head and spine, neurologic tests to a neurologist, done alot of blood test to check CPK, thyroid, aldolasi and an EMG test at the beginning of Sep- everything came back all clear.
I was relieved in a way but on the other hand my problems still persist and I havent got back to get back to normal due to this problem with my right arm... im very concerned cos I know ALS is hard to diagnose regardles and I used to train really alot (more than 5x a week).and beyond my limit since pandemic hit us till like May this year so im worried i might have done smth to myself due to that. I find really hard to believe this is just "in your head" kinda sentence . Really scared cos my CENTRAL NERVOUS SYSTEM seems completely out of wack..
Thank you and stay strong you guys
First, I would like to thank you all in advace for taking the time to read through my situation and advice me, if possible. My heart goes to all of you who are in here, no matter whats your circumastances are cos Its hard!
I just wanted some advice from people who are in this as they might have a better idea on what it is happening and/or if they can at least relate to my situation at all (given this all covid thing going on)
I started having weird symptons since Mid May which made me think of the worst and cant put my mind at ease...
I started off having upper back pain, off balance sensation and horrible and CONSTANT tingling and pind and needles sensation in all my 4 limbs from the first time in morning till bed time which improved only with walking or moving.
It lasted for about 2 months but I was still able to work and do my things somehow.
Since August, the pin and needles sensation stopped but I started noticing more worried symptoms : started feeling weak especially when climbing stars or riding my bike for a little while or walking for a long distance and my right arm has difficult holding my phone for a while or typing and writing as my right hand constantly get all numb and shaky and my right forearm muscles and chest start twitching as if they are suffering, joints in my shoulders, knees and wrists make a cracking sound while moving and thumbs in my hands constantly get locked up.
Alongside all this, its been 3 months that my bowel stopped working as usual (its really hard to go to toilet and get always constipated ) and my period stopped as well .
I checked in with my GP and got different exams: MRIs of my head and spine, neurologic tests to a neurologist, done alot of blood test to check CPK, thyroid, aldolasi and an EMG test at the beginning of Sep- everything came back all clear.
I was relieved in a way but on the other hand my problems still persist and I havent got back to get back to normal due to this problem with my right arm... im very concerned cos I know ALS is hard to diagnose regardles and I used to train really alot (more than 5x a week).and beyond my limit since pandemic hit us till like May this year so im worried i might have done smth to myself due to that. I find really hard to believe this is just "in your head" kinda sentence . Really scared cos my CENTRAL NERVOUS SYSTEM seems completely out of wack..
Thank you and stay strong you guys