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Congrats on the first steps Rob. You and your wife are in my thoughts.

Hugs,

Sue
 
You are a wonderful caregiver. Steve's doctor didn't want Steve to get one either. I fought hard and got a doctor to get it done.

A year later and he only uses it for meds and is FVC is down to 14%. We would still make the same choice over again. It will make it easier when the time comes.
 
Good job, Rob! Few people realize how much time and effort we CALS spend advocating (more like fighting) for our PALS.

Sharon
 
Hi Rob, you remind me of me as a CALS, moving heaven and earth to make things happen for our PALS. It's awesome you did this, I am so proud!
 
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