Help! Is cold-induced weakness a symptom?

Status
Not open for further replies.

Blondrea

Active member
Joined
Oct 27, 2014
Messages
88
Reason
CALS
Country
US
State
CA
City
Sherman Oaks
Hello. My boyfriend has "probable ALS." (Per an ALS specialist.) He has both UMN and LMN signs, bad EMG, etc. He also has cold-induced hand weakness. I believe this is called "cold paresis." His hands weaken to the point that he can't turn a key when they are cold. Then, he regains strength when he warms up. Has anyone out there experienced this? I've heard of a few people with MMN experiencing this, but am not sure about ALS folks. Any insight would be (as always) greatly appreciated.
Thank you!
 

MaxEidswick

Legendary member
Joined
Sep 1, 2013
Messages
5,567
Reason
PALS
Diagnosis
08/2013
Country
US
State
Texas
City
Pinehurst
>His hands weaken to the point that he can't turn a key when they are cold. Then, he regains strength when he warms up. Has anyone out there experienced this?

I' can't turn a key anyway, but cold wipes me out :-(
 

Clearwater AL

Very helpful member
Joined
Aug 28, 2013
Messages
1,816
Reason
PALS
Diagnosis
12/2016
Country
US
State
NC
City
Central NC
The winters here in Central North Carolina are relatively mild compared to the northern states. Just a few years ago I didn't own a pair of gloves (accept work gloves for the summer chores) but I sure do now! I seldom wore a hat... it was one of those mess up my hair things, that's the least of my concern now. I even have one of those wrap around your neck things which I used to think was a woman's thing. And... I've gone from jackets to 3/4 length winter coats. Just to go from the car to stores, offices and get the mail. :)
 

patrick123

Distinguished member
Joined
Oct 4, 2012
Messages
441
Reason
PALS
Diagnosis
09/2012
Country
US
State
co
City
thornton
I live in Colorado and the cold does not help. At my last clinic visit a week ago my doctor noticed my left was colder then the right. I asked what does that mean. Simple answer. Less muscle tissue.
Patrick
 

ECpara

Senior member
Joined
Jan 7, 2012
Messages
605
Reason
Lost a loved one
Diagnosis
02/2012
Country
US
State
GA
City
Thomasville
My PALS husband still has mobility. But he avoids cold days like the plague, it plays havoc on his muscles and he can't move nearly as well. It exhausts him, too. Glad we live in southern GA. So your boyfriend's plight sounds legitimate, I didn't realize it had a name.
 

patrick123

Distinguished member
Joined
Oct 4, 2012
Messages
441
Reason
PALS
Diagnosis
09/2012
Country
US
State
co
City
thornton
The name I use is cooler than snot.
Patrick
 

4tloml

Senior member
Joined
Sep 15, 2014
Messages
576
Reason
CALS
Diagnosis
04/2013
Country
US
State
CA
City
Suburban
We had to buy gloves for my husband when mornings turned cool for that exact reason. After he'd walk the dog, he couldn't turn the key in the door to get into the house. Gloves keep his hands warm enough to manage it now.
 

Mediasmart

Distinguished member
Joined
Nov 4, 2013
Messages
392
Reason
PALS
Diagnosis
08/2013
Country
US
State
NY
City
Orient
I can't put on gloves without help so stupidly went without anything and now, in this winter, I really can feel cold 's effects. The answer of course was mittens. I mentioned this to my neuro who thought that one reason this is so under reported has to do concentrations of older populations who have a greater chance of mnd live in warmer states where cold is less an issue. PS .. the mittens make a huge difference.
 

Blondrea

Active member
Joined
Oct 27, 2014
Messages
88
Reason
CALS
Country
US
State
CA
City
Sherman Oaks
Everyone, thanks so much for your words of wisdom. Very helpful. I am wondering, do any of you have hand weakness in the cold that virtually disappears when your hands warm up?
 

MaxEidswick

Legendary member
Joined
Sep 1, 2013
Messages
5,567
Reason
PALS
Diagnosis
08/2013
Country
US
State
Texas
City
Pinehurst
>do any of you have hand weakness in the cold that virtually disappears when your hands warm up?

I
wish :-(
 
Status
Not open for further replies.
Top