JM888
New member
- Joined
- Sep 27, 2023
- Messages
- 2
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- AU
- State
- QL
- City
- Clontarf
Hi Everyone
Thanks In advance for taking the time to read my post. I'm (35M) currently very concerned I have ALS after close to 3 months of severe progressive weakness, atrophy (confirmed by gp and neuro) and fasciculations in both legs and my right arm (i have a mobility scooter as cant walk more than 100m, and my right hand is very weak but still no "clinical weakness" apparently). I've also lost 10% of my body weight in 4 or so months with no diet changes. My first Neuro refused me an EMG 2 months ago and also refused to see me again before 6 months had passed (long story, but he tried to tell me it was all anxiety driven, my GP and the second neuro couldn't believe his attitude) so I was forced to book with another neuro for an EMG which was this morning.
The neuro completing the test has told me that ALS isn't even on his radar (his leaning towards post viral illness or an auto immune issue due to some sensory issues in the nerve conduction study that apparently point him away from ALS) and that nothing in the EMG raised red flags for ALS. My question is isn't it pretty clear from the attached EMG that ALS is very much on the radar with fasciculations (acute) and large motor units (chronic) noted in 2 leg muscles? He only mentioned chronic denervation and that he thinks there is another cause for my problems (I do have some lower back issues evident on recent mri but wouldn't explain my arm weakness)?
Cheers
Thanks In advance for taking the time to read my post. I'm (35M) currently very concerned I have ALS after close to 3 months of severe progressive weakness, atrophy (confirmed by gp and neuro) and fasciculations in both legs and my right arm (i have a mobility scooter as cant walk more than 100m, and my right hand is very weak but still no "clinical weakness" apparently). I've also lost 10% of my body weight in 4 or so months with no diet changes. My first Neuro refused me an EMG 2 months ago and also refused to see me again before 6 months had passed (long story, but he tried to tell me it was all anxiety driven, my GP and the second neuro couldn't believe his attitude) so I was forced to book with another neuro for an EMG which was this morning.
The neuro completing the test has told me that ALS isn't even on his radar (his leaning towards post viral illness or an auto immune issue due to some sensory issues in the nerve conduction study that apparently point him away from ALS) and that nothing in the EMG raised red flags for ALS. My question is isn't it pretty clear from the attached EMG that ALS is very much on the radar with fasciculations (acute) and large motor units (chronic) noted in 2 leg muscles? He only mentioned chronic denervation and that he thinks there is another cause for my problems (I do have some lower back issues evident on recent mri but wouldn't explain my arm weakness)?
Cheers