Dear Angel, what a blow this is. You, your husband and family are so young to be facing such a diagnosis. I understand your "lost" feeling in all of this. It will take you and your husband time to come to terms with this. It is understandable that your husband doesn't want to talk about it right now. Your head must be whirling, and your heart overwhelmed. Reach out for as much support as you can find, from loved ones and friends, from the ALS Society and from us here--write as often as you feel. Know that you are not alone. People as young as you have been on this journey. All of us on the forum are on it and have much to offer in the way of emotional support and information for each challenge, each situation. I'm so sorry. At first everything seems bleak and hopeless, but for those of us who've had ALS for some time, we know that there is life to be lived, joy and love to be shared, memories to be created, and solutions for every problem along the way. Things develop gradually, with time to manage each situation. And as they do, you will find a deeper appreciation for each other, your children, for life and its blessings. Be encouraged. Cry when you need to. You will experience a wide range of emotions. Keeping you in prayer--
Charlene