Nikkic
New member
- Joined
- Nov 20, 2008
- Messages
- 4
- Reason
- Loved one DX
- Country
- US
- State
- WA
- City
- Seattle
Hello;
I have been reading some of the posts here and they are very helpful. I don't know where to start, but my father was diagnosed with ALS last November and he passed away this past September. I am 44 years old, an athlete and I regularly bike, climb and ski. I have noticed that over the past year or so my muscles seem weaker and I am extremely sore the day after a work out, even a very easy work out and my muscles and ligaments are very, very tight. I also have experienced dizziness while climbing or extreme exertion even while climinb places I have climbed before with no problem. I also think that I feel what may be fasiculations on the inside of my muscles- no outward signs. I also seem to be unable to do things that I was easily able to do even one or two years ago.
I am really struggling with what to do. I know the obvious thing is to go to the doctor. However, I am afraid to do that because I may be switching jobs soon and if it turns out to be ALS I just can't risk switching insurance companies and having a pre-existing condition. I have talked to my husband about it but he always says things like 'I am sore too after excersize" or he suggests that I am getting old. However, the level of soreness that I experience after a workout is such that it is almost unbearable and I can hardly even touch my muscles. It feels like someone beat me up.
I guess I am wondering has anyone else experienced muscle soreness and weakness as the first sign? Do you have any suggestions as to what to do? I feel like I am living in suspended animation. Because I know what lies ahead if this is ALS, I find myself not making plans for the future or actually thinking that I may not be living much longer. I have even said this on one occasion or two to my husband which of course he gets really upset. I know this is crazy since I technically haven NOT been diagnosed. Any suggestions?
thank you
Nikki C
I know that watching my dad decline and then die may be driving my anxiety about this.
I have been reading some of the posts here and they are very helpful. I don't know where to start, but my father was diagnosed with ALS last November and he passed away this past September. I am 44 years old, an athlete and I regularly bike, climb and ski. I have noticed that over the past year or so my muscles seem weaker and I am extremely sore the day after a work out, even a very easy work out and my muscles and ligaments are very, very tight. I also have experienced dizziness while climbing or extreme exertion even while climinb places I have climbed before with no problem. I also think that I feel what may be fasiculations on the inside of my muscles- no outward signs. I also seem to be unable to do things that I was easily able to do even one or two years ago.
I am really struggling with what to do. I know the obvious thing is to go to the doctor. However, I am afraid to do that because I may be switching jobs soon and if it turns out to be ALS I just can't risk switching insurance companies and having a pre-existing condition. I have talked to my husband about it but he always says things like 'I am sore too after excersize" or he suggests that I am getting old. However, the level of soreness that I experience after a workout is such that it is almost unbearable and I can hardly even touch my muscles. It feels like someone beat me up.
I guess I am wondering has anyone else experienced muscle soreness and weakness as the first sign? Do you have any suggestions as to what to do? I feel like I am living in suspended animation. Because I know what lies ahead if this is ALS, I find myself not making plans for the future or actually thinking that I may not be living much longer. I have even said this on one occasion or two to my husband which of course he gets really upset. I know this is crazy since I technically haven NOT been diagnosed. Any suggestions?
thank you
Nikki C
I know that watching my dad decline and then die may be driving my anxiety about this.