finnmale
New member
- Joined
- Jun 30, 2022
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- FI
Hi everyone and thank you very much for your possible help in advance.
I am a 44 yo male and I started to have some minor muscle twitching last October on my right foot. Then during the winter it spread to other muscles mainly affecting calves and thighs, occasionally on hands too. I also suffered from some muscle fatigue and exercise intolerance. I had very “light” Covid in late April.
Now in the end of May I was hospitalised for a day after my Creatine Kinase level was really high in a lab test taken after I couldn’t perform some muscle exercises without a muscle tremor and having to stop after 10 minutes. The CK level was first 3000, then 11000 until beginning to decrease. I also suffered from a (middle) back pain then. Now the CK is back to normal.
The hospital staff decided that I needed some other tests, too and send me to EMG and NCV. The doctor doing the tests didn’t tell me much but when I asked her if there was something she said that the EMG was “not perfectly normal” and also took an ultrasound from my left biceps (didn’t say anything about that). This abnormality in EMG seems to have made me very, very anxious about possibility of ALS (abnormal EMG and fasciculations combined made me reading a lot of scientific papers about ALS/MNDs and ‘convinced’ me of now having ALS as BFS don’t have abnormal EMG).
The fasciculations are now quite bad and feeling all over the body. Especially in the night time the fasciculations and “electric” feeling keep me from getting sleep, feels like there was constant electric current going on in my muscles. Last night I also felt myoclonus on my left foot. Tingling is also constant in my both legs.
In the daytime my muscles, mainly thighs, calves and biceps feel very fatigued/jello/tight which makes walking a bit hard and if I persist I will get cramps (feels like I had run a marathon). I have been trying to say that these are occurring in both sides of my body which, I guess, isn’t typical for ALS, but then I think I have missed the start in my right foot earlier.
I have a appointment in the hospital next week (July 7), but these night time sensations/not sleeping/constant twitches and perceived muscle fatigue make it really hard to try to stay calm and keep living my life. Would you guys have any advice for me?
I am a 44 yo male and I started to have some minor muscle twitching last October on my right foot. Then during the winter it spread to other muscles mainly affecting calves and thighs, occasionally on hands too. I also suffered from some muscle fatigue and exercise intolerance. I had very “light” Covid in late April.
Now in the end of May I was hospitalised for a day after my Creatine Kinase level was really high in a lab test taken after I couldn’t perform some muscle exercises without a muscle tremor and having to stop after 10 minutes. The CK level was first 3000, then 11000 until beginning to decrease. I also suffered from a (middle) back pain then. Now the CK is back to normal.
The hospital staff decided that I needed some other tests, too and send me to EMG and NCV. The doctor doing the tests didn’t tell me much but when I asked her if there was something she said that the EMG was “not perfectly normal” and also took an ultrasound from my left biceps (didn’t say anything about that). This abnormality in EMG seems to have made me very, very anxious about possibility of ALS (abnormal EMG and fasciculations combined made me reading a lot of scientific papers about ALS/MNDs and ‘convinced’ me of now having ALS as BFS don’t have abnormal EMG).
The fasciculations are now quite bad and feeling all over the body. Especially in the night time the fasciculations and “electric” feeling keep me from getting sleep, feels like there was constant electric current going on in my muscles. Last night I also felt myoclonus on my left foot. Tingling is also constant in my both legs.
In the daytime my muscles, mainly thighs, calves and biceps feel very fatigued/jello/tight which makes walking a bit hard and if I persist I will get cramps (feels like I had run a marathon). I have been trying to say that these are occurring in both sides of my body which, I guess, isn’t typical for ALS, but then I think I have missed the start in my right foot earlier.
I have a appointment in the hospital next week (July 7), but these night time sensations/not sleeping/constant twitches and perceived muscle fatigue make it really hard to try to stay calm and keep living my life. Would you guys have any advice for me?