mcgarr
New member
- Joined
- Apr 27, 2008
- Messages
- 1
- Reason
- Loved one DX
- Country
- US
- State
- Iowa
- City
- Dubuque
I am new to this forum. My mother has ALS and sadly it is progressing rapidly. She already is on a feeding tube and can not talk or walk. Lately her strength continues to be sapped.
Emotionally she has never come to terms with having this awful disease. She has never welcomed any of the accommodations, making communication with her completely one-sided now.
My parents 40 year marriage has never been strong in my opinion and this added stress has not helped them grow together. My dad is doing a lot of help physically, but mentally he certainly has been heartless at times - even when considering the stress he is under.
And I don't want to paint myself as some saint in this. I pushed on my Mom hard at the begining and intermediate stages to accept the help and meet with the professionals, but when she continually rejected it I took the attitude of allowing her to do what she wants. I also overuse the excuse that I have three young children, a job with much responsibility, and a three-hour drive so that I don't get back much more than once a month.
My emotions run all over the place - sad, angry, selfish for not doing more, confused.
There is so much more I could say, but maybe this is a start to welcome myself.
mg
Emotionally she has never come to terms with having this awful disease. She has never welcomed any of the accommodations, making communication with her completely one-sided now.
My parents 40 year marriage has never been strong in my opinion and this added stress has not helped them grow together. My dad is doing a lot of help physically, but mentally he certainly has been heartless at times - even when considering the stress he is under.
And I don't want to paint myself as some saint in this. I pushed on my Mom hard at the begining and intermediate stages to accept the help and meet with the professionals, but when she continually rejected it I took the attitude of allowing her to do what she wants. I also overuse the excuse that I have three young children, a job with much responsibility, and a three-hour drive so that I don't get back much more than once a month.
My emotions run all over the place - sad, angry, selfish for not doing more, confused.
There is so much more I could say, but maybe this is a start to welcome myself.
mg