red67
New member
- Joined
- Dec 7, 2007
- Messages
- 0
- Reason
- Loved one DX
- Country
- US
- State
- California
- City
- San Dimas
I just wanted to introduce myself. My sister was just diagnosed with ASL. She has been dealing with it for two months and just told me. She lives in Virginia and I am in California. She is experiencing weakness, twitching, and wasting in her right hand and arm. She says her pinky and thumb will not touch anymore and that her pinky refuses to participate with the rest of her hand. I am here to learn more about this disease and to find out what I can do to help my sister. She is 49 years old and I am her younger brother of 48. She is a marathon runner. I asked her if she should still be running marathons or if it would be too taxing on her and she said she will run until she can't anymore and then she will crawl. This is heartbreaking for my family. I'm just trying to learn what we should all expect. Thanks for listening.
Red67
Red67