Dear All
Hello , I have been suffering from a progressive neurological illness for the past 14 months .
started with tingling/pins and needls in my little finger July 2010 which progressed up my arm and then a buzzing in my rt foot, I have had every blood test you coud list low B12 ( now i am loaded following months of injections ) Doc initially said pernicious aneamia but as there was no improvement and a continual decline he said this was a 'red herring ' , i am also low on Vit D every thing else is normal
2 MRI 's - a spot on my brain , a spot on my spinal cord , no changes between these done over 12 months
LP - done 20th August , still waiting results my GP is furious!
I have fallen twice , April this year ripped my tendons in my rt ankle ( boy that hurt ) , then i fell again 2 weeks ago when i caught my toes in a flex i was trying to step over, doc says drop foot when i visited him and he did a general exam .
I could see the shock in face and he described the following as major concern in a letter to my neurologist
' I was shocked at her deterioration , whilst the weakness initially affected her right leg there is now bilateral weakness and also involves her arms and hands to a lesser extent. There is marked spasticity and hyper-reflexia with spontaneous clonus on active movement .There was also obvious fasiculation in her right foot and calf to the point i wondered about ALS , but i guess her initial presentation with sensory symptoms rules this out.'
I know they are testing me for MS , my doctor has referred my yo a fifferent neurologist who i get to see 14 November , and he has also referred my for NCV/EMG which is booked for 25th October .
i suppose i am hanging onto that Probably not ALS due to initial presentation with tingling /pins and needles . ( which i dont have now , but o do have a buzzing feeling in my feet and hands )
I guess i am looking for reassurance/support until the EMG when i will know for sure , its been a tough week since he threw that possibilty into the equasion .
kindest regards Mary
Hello , I have been suffering from a progressive neurological illness for the past 14 months .
started with tingling/pins and needls in my little finger July 2010 which progressed up my arm and then a buzzing in my rt foot, I have had every blood test you coud list low B12 ( now i am loaded following months of injections ) Doc initially said pernicious aneamia but as there was no improvement and a continual decline he said this was a 'red herring ' , i am also low on Vit D every thing else is normal
2 MRI 's - a spot on my brain , a spot on my spinal cord , no changes between these done over 12 months
LP - done 20th August , still waiting results my GP is furious!
I have fallen twice , April this year ripped my tendons in my rt ankle ( boy that hurt ) , then i fell again 2 weeks ago when i caught my toes in a flex i was trying to step over, doc says drop foot when i visited him and he did a general exam .
I could see the shock in face and he described the following as major concern in a letter to my neurologist
' I was shocked at her deterioration , whilst the weakness initially affected her right leg there is now bilateral weakness and also involves her arms and hands to a lesser extent. There is marked spasticity and hyper-reflexia with spontaneous clonus on active movement .There was also obvious fasiculation in her right foot and calf to the point i wondered about ALS , but i guess her initial presentation with sensory symptoms rules this out.'
I know they are testing me for MS , my doctor has referred my yo a fifferent neurologist who i get to see 14 November , and he has also referred my for NCV/EMG which is booked for 25th October .
i suppose i am hanging onto that Probably not ALS due to initial presentation with tingling /pins and needles . ( which i dont have now , but o do have a buzzing feeling in my feet and hands )
I guess i am looking for reassurance/support until the EMG when i will know for sure , its been a tough week since he threw that possibilty into the equasion .
kindest regards Mary
