Sunshine
Active member
- Joined
- Jun 6, 2006
- Messages
- 32
- Reason
- Learn about ALS
- Country
- US
- State
- Delaware
- City
- Claymont
I have been reading the threads for a little while now. I'm not really sure how to begin. My husband might have a motor neuron disease. He has been having symptoms for about 10 months probably even longer. It started with hand cramps in both hands more on the left. Everything is really worse on the left side. He drops things all the time. He has a lot of fatigue and weakness. He also has muscle wasting in the hands and arms. He has muscle twitching and muscle cramps all over the body. His new neurologist has him on Quinine. It is helping. During a two week period he had trouble swallowing food like chicken nuggets and had to cut them into small pieces. I noticed he was having a lot of saliva when he was talking and slurring for a couple of days. But now he seems fine in those areas. In the beginning is that what happens? Or was the saliva etc. just a coincidence? He has had 3 EMGs. The first two showed some problems but nothing of real concern. The third by a different doctor showed abnormal activity most likely anterior horn disease. MRIs came back ok. He recently had a Cat scan and more blood work. He also just had the Kennedy Disease DNA done so we have to wait for the results for them. He won't see the neurologist again until about 4-6 weeks to give the doctor enough time to get the Kennedy test back. My husband is 39 years old and has always worked physical jobs. He is finding it very difficult to make it through the day at work. Thank you for listening and any information you can give me would be of great help. Take care. Sunshine