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puddycat

New member
Joined
Nov 16, 2008
Messages
5
Reason
Loved one DX
Diagnosis
11/2008
Country
US
State
az
City
phoenix
Hello to you all,
My husband was diagnosed with ALS about 3 months ago, the doctors say it started around April 2008. I have been reading postings on this forum and I think all of you people here are so wonderful and so supportive! I have learned so many things here and feel all of the support you give each other!

Short story to our story. My husband is 37 years old and has bulbar ALS. He has problems speaking, swallowing, moving his right hand and arm, and now his right leg is having problems. He works as a contractor and so he does not have any benefits. We do have health insurance with my work and I thank God every day for that!

I have been able to identify with many of you and your postings and I have grown to care about so many of you. Thank you for your courage to post your problems and feelings here.

I will keep reading and look forward to meeting many of you!

Tanya
 

olly

Extremely helpful member
Joined
Jan 10, 2008
Messages
2,732
Reason
PALS
Diagnosis
11/2007
Country
uk
State
uk
City
uk
hello tanya.
welcome to the forum,sorry to hear about your husbands diagnosed.
i hope we can answer any questions you may have and help both you and your husband:)
 

Marjorie R. Wilcox

Senior member
Joined
Nov 21, 2007
Messages
660
Diagnosis
10/2007
Country
US
State
New York
City
Richmondville
Welcome to the forum. I am busy at this minute but just want to tell you to apply for Social Security disability right away, and military disability if he served. Will be looking forward to hearing from you on this site. God bless. Rick and Marjorie
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,543
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
Welcome to the forum, Tanya. I see you have already made friends. Ask us anything- folks around here are very helpful. Regards, Cindy
 

JohnMc

Active member
Joined
Apr 12, 2008
Messages
50
Reason
PALS
Diagnosis
10/2008
Country
US
State
AZ
City
Phoenix
Welcome, Tanya

Your husband's symptoms sound similar to mine. Does he attend one of the ALS clinics in the valley?

I hope this forum is helpful to you.

John
 

brooksea

Legendary member
Joined
Sep 27, 2006
Messages
5,171
Reason
Other
Country
HM
Hi Tanya!

Sorry about your husband.

Welcome.
 

rose

Extremely helpful member
Joined
Mar 29, 2008
Messages
2,879
Reason
DX MND
Diagnosis
7/2008
Country
US
State
Maryland
City
Anytown
Hi Tanya,

How is your husband coping with the diagnosis?

I wanted to echo others to encourage him to apply for Social Security Disabilty right away, the sooner things like this are in place, the better.

Welcome to the forum, just sorry for the reason you're here.
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Hello Tanya. Welcome.

AL.
 

MtPockets

Very helpful member
Joined
Jun 1, 2006
Messages
1,528
Reason
PALS
Diagnosis
05/2006
Country
US
State
Ms
City
Gulfport
Tanya,
Welcome to the Forum. Sorry to hear about your husband. I hope you can find the answers to the questions you must have.
 

puddycat

New member
Joined
Nov 16, 2008
Messages
5
Reason
Loved one DX
Diagnosis
11/2008
Country
US
State
az
City
phoenix
Hi John,
My husband is going to the ALS clinic at Good Sam. What about you? Where are you going? We have been really pleased with their doctors there. They are wonderful.
 

JohnMc

Active member
Joined
Apr 12, 2008
Messages
50
Reason
PALS
Diagnosis
10/2008
Country
US
State
AZ
City
Phoenix
Tanya

I also go to the Good Sam clinic. Going back on the 21st, I think.
 

brendapals

Senior member
Joined
Jul 6, 2008
Messages
953
Reason
PALS
Diagnosis
06/2008
Country
US
State
any
City
any
Tanya,
Like everyone said, welcome to the forum. And yes, please help him apply for disability right away. I was diagnosed 6/3/08 and found out 2 weeks ago that I was denied, because I kept right on working. As it turns out, I made too much money in that 6 months to qualify. Seems kinda funny though, I have worked 31 yrs of my life, and they did that.
Oh well, I'm not dwelling on it too much, I have the ball rolling to make the right amount of money over the next 6 months.
Sorry to talk so much, but I love to "talk"
take good care, and feel free to ask away,
brenda
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,543
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
Brenda- did you apply for SSDI? I thought that a DX of ALS meant automatic qualification for that program. Or am I thinking of another government benefit?
 

MtPockets

Very helpful member
Joined
Jun 1, 2006
Messages
1,528
Reason
PALS
Diagnosis
05/2006
Country
US
State
Ms
City
Gulfport
I am not sure of how the law works now, but when I applied I had to file three times before approval and the last time hired a Social Security Lawyer who was pain by SS, and finally got the approval.
Don't give up. Keep trying. Call a lawyer.
 

hopingforcure

Very helpful member
Joined
Feb 14, 2008
Messages
1,420
Diagnosis
09/2007
Country
US
State
USA
City
Any
I hate to hear of people having trouble getting Disability. ALS is a 21 day to benifits disease. I think this is crazy.. Look at the new guidelines, not any waiting period. I do not believe they can deny it period...........
 
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