Hello... new member looking to talk.

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Carlos1970

New member
Joined
Apr 30, 2007
Messages
1
Reason
PALS
Country
CA
State
Quebec
City
Montreal
Hi everyone,
I'm a new member. I'm 37 and come September 2007 it'll be 3 years that I was DX with ALS. I'm doing well; my progression is relatively slow. I can actually still walk (although very little) I have been living in a long term care facility for 6 months now.
I'm hoping to meet some people who are living through some of the same things as I am and maybe make some friends that I can talk to in the process.
Thanks for your time.
Carlos.
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,543
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
Hi Carlos. Glad you decided to join us. We've had a couple of members in long term facilities. Be nice if they check back in so you guys could share experiences. But it is great that you are progressing slowly! Do your friends and family get a chance to stop in to see you once and awhile? Cindy
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Welcome Carlos. You have come to a good place. This site is about helping others and getting help and friendship. Glad you found us.
AL.
 

liz

Senior member
Joined
Nov 9, 2006
Messages
642
Reason
PALS
Diagnosis
11/2006
Country
US
State
NY
City
Albany
Nice to meet you Carlos. If you're looking for support and companionship, you've definitely come to the right place. We'll be glad to get to know you.

Have a nice day. :)

Liz
 

shellshell

Active member
Joined
Apr 11, 2007
Messages
61
Reason
Loved one DX
Country
US
State
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City
Scott
Hi Carlos! I too am a new member of this forum and it's been such an instrumental part of my day to read all the helpful posts. My dad was diagnosed in February 2007 and this is a wonderful, helpful and caring group of people that will answer any question you may have! Glad to meet you! :-D

Michelle
 

Carlos1970

New member
Joined
Apr 30, 2007
Messages
1
Reason
PALS
Country
CA
State
Quebec
City
Montreal
Hi Cindy, thanks for being my first reply. I wasn't sure how long it would take. Everyone here seems very nice, I'm looking forward to getting to know every one of you.
To answer your question, I have a very supportive and big family. I usually have a visit every few days.
Take care.
Carlos.
 

Carlos1970

New member
Joined
Apr 30, 2007
Messages
1
Reason
PALS
Country
CA
State
Quebec
City
Montreal
Hey Al, thank you for the nice welcome.
Take care.
Carlos.
 

Carlos1970

New member
Joined
Apr 30, 2007
Messages
1
Reason
PALS
Country
CA
State
Quebec
City
Montreal
Hi there Liz, I'm kind of surprised by all the response, thank you. I look forward to getting to know you.
Carlos.
 

Carlos1970

New member
Joined
Apr 30, 2007
Messages
1
Reason
PALS
Country
CA
State
Quebec
City
Montreal
Hi Michelle, it's nice to meet you too. I hope that things with dad are going well and that the load is not too heavy. In the beginning it can feel like you're being bombarded from every side.
All the best.
Carlos.
 

bdyle

Active member
Joined
Apr 3, 2007
Messages
62
Reason
PALS
Country
US
State
mississippi
City
picayune
Hello

Hey Carlos, nice to meet you. This is really a great site and full of good info, the folks on here are great. I was diagnosed with ALS in Dec. 05, have a good day. Billy,
 

Cetus

New member
Joined
May 1, 2007
Messages
0
Reason
PALS
Country
CA
State
Quebec
City
Montreal
Hi Carlos,

I just signed up myself and noticed that you are located in Montreal, as I am. I would be happy to discuss issues with you and hopefully provide answers to your questions.
I was diagnosed in June'04 and guess that I am about where the "average " patient would be. Arms and legs are pretty much ballast but luckily, eating is still not a problem.
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Welcome Cetus it sounds like you and I might be around the same area in progression as well. You might be a bit ahead of me though. I'm sure we'll all be able to compare stories over time.
AL.
 

candd

Member
Joined
May 2, 2007
Messages
11
Reason
PALS
Country
US
State
il
City
steger
Carlos,
I am also new at this forum thing...signed on this morning and you are my second contact. I'm not quite sure yet if "it's" for me - I do get a very strong sense of bonding from what little I've read. My first contact was with Al ( I see he responded as well) and it was in search of info reguarding severe pain of the achilles tendons that I've been exp for the past 3 weeks. Can anybody out there help me with that?
My symptoms began '04 and diagnosed '05. Currently, no fine motor exists in left hand and rt is catching up. I still walk- with AFO's no cain needed and iffy. W/out, 2 cains work but a walker is safer. Just the past mo. my speach has changed...harder to articulate/project, making my job as a phys.ed. teacher that much more difficult. It is my hope to finish the year and then go on disability.
Don't really know how I fit in with my progression rate - never talked to another ALS person...............anybody? From the way it sounds, we must be pretty similar Carlos. Looking fwrd to hearing back.

Denise
 

bufbon2

New member
Joined
May 2, 2007
Messages
5
Reason
Loved one DX
Country
US
State
NY
City
West Seneca
Hey Carlos!

I'm new to the forum also. My brother was diagnosed with ALS when he was 28, we just celebrated his 47th b-day! I'm happy to share anything with you that might help you.
 

Carlos1970

New member
Joined
Apr 30, 2007
Messages
1
Reason
PALS
Country
CA
State
Quebec
City
Montreal
Wow! God bless him. It is stories like that that keeps me going.
I'm sure he had a great support circle of friends and family. Because I do and it helps me feel some days that I can make it too. Thanks for sharing and say hey to your brother for me.
Carlos.
 
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