Thatkid
New member
- Joined
- May 31, 2020
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NY
- City
- White plains
First off I’d like to thank the people that help others out on this site. I feel for the ones actually going through ALS but I’m just confused and frightened. The last thing I want to do is waste anyone’s time but I’m just looking for some input from someone who has experience.
Here’s my story sometime around April 19th I ran a mile. The following day I had excess saliva it kept pooling in my mouth driving me crazy. Constant spitting and this lasted quite a while even til this day. I still have some excess saliva, It’s somewhat manageable now but this isn’t how my mouth felt before there’s just extra saliva. I was driving myself crazy looking for answers getting little sleep having trouble with work. One night my thigh twitched it was weird but I went to sleep brushed it off the following days the twitching got worse it spread everywhere throughout my body. I thought I was having a seizure or something at one point everywhere from the neck down was spazzing all together at once for about a minute. Ever since then it’s been twitching here and there not crazy but it’s in random parts of my body. I got curious and researched sure enough mnd, als and a bunch of other things popped up, I read about tongue twitches and that’s when it all hit me I checked my tongue and it was twitching. Completely freaked out I looked up a bunch of videos and I just can’t tell what’s what everything appears to not move if I rest my tongue but if I stick it out. The middle a little towards the back presses in about the size of an eraser and the rest of my tongue shakes and the further I stick it out the sides seem to twitch as well I’ll post a video but any help would be appreciated
Here’s my story sometime around April 19th I ran a mile. The following day I had excess saliva it kept pooling in my mouth driving me crazy. Constant spitting and this lasted quite a while even til this day. I still have some excess saliva, It’s somewhat manageable now but this isn’t how my mouth felt before there’s just extra saliva. I was driving myself crazy looking for answers getting little sleep having trouble with work. One night my thigh twitched it was weird but I went to sleep brushed it off the following days the twitching got worse it spread everywhere throughout my body. I thought I was having a seizure or something at one point everywhere from the neck down was spazzing all together at once for about a minute. Ever since then it’s been twitching here and there not crazy but it’s in random parts of my body. I got curious and researched sure enough mnd, als and a bunch of other things popped up, I read about tongue twitches and that’s when it all hit me I checked my tongue and it was twitching. Completely freaked out I looked up a bunch of videos and I just can’t tell what’s what everything appears to not move if I rest my tongue but if I stick it out. The middle a little towards the back presses in about the size of an eraser and the rest of my tongue shakes and the further I stick it out the sides seem to twitch as well I’ll post a video but any help would be appreciated