Hello I'm new

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Ste orourke

New member
Joined
Jul 11, 2008
Messages
2
Reason
PALS
Diagnosis
06/2008
Country
AU
State
SA
City
adelaide
Hi everyone
Just found this site and I am hoping it's going to be a help during the difficult time we have coming up. I was diagnosed with ALS on the 10th June 2008 I am 40 have a wife and 2 beatiful girls aged 5 and 13. Just wanted to say hello and look forward to getting to know you all
Cheers Ste
 

crystalkk

Very helpful member
Joined
Sep 11, 2007
Messages
1,210
Reason
Learn about ALS
Country
US
State
pennsylvania
City
philadelphia
Hi Ste,

Welcome to the forum. Sorry about your diagnosed, there are alot of great people on this forum that will be able to help you with support, and answers to questions. May I ask what your symptoms are and how long it took
you to get your diagnosed?

Hang in there,
 

fiddleplayer51

Distinguished member
Joined
Mar 24, 2008
Messages
337
Reason
CALS
Diagnosis
03/2008
Country
US
State
VA
City
Harrisonburg
Hello Ste,
Welcome, although I'm so sorry for why you're here. You've definitely come to the right place for support, advice, info, and venting. We have several young fathers here now like yourself.
Please feel free to post and ask any and everything. It's just great that you've found us and I would encourage your wife to join as well as she will also benefit greatly from interacting here.
All good wishes and I wish you courage for the time ahead.
Peace,
Jane
 

GRM2008

Active member
Joined
Jun 29, 2008
Messages
32
Reason
Lost a loved one
Country
US
State
NY
City
Massapequa
Hang in there

So sorry about your diagnosis, I just recently joined because my mom was diagnosed on June 24. I think as upsetting as it is, what has helped us is to find out as much as we can but also to try to take one day at time. We are reading everything we can, both medical and holistic, talking to others, etc. We hear promising things about trials with creatine, and Co-Q-10 for possibly slowing the progression. Perhaps we are just wasting our time, but as my sister said, it can't hurt to put up as many "shields" as possible. And if you believe you are helping your body to be healthy, it will help your mental attitude as well. Always check with your doctors but ultimately everything is your decision, based on what you feel is worth trying or not. We've read alot about de-toxing, with a safe and natural product, and eating healthy always, avoiding artificial sweeteners, drinking lemon water, etc. Good luck, you are not alone, as I have recently found. This site will help you alot.
 

vmd

Senior member
Joined
Apr 27, 2007
Messages
581
Reason
Other
Country
US
State
idaho
City
N/A
Ste, you will find many good people, suggestions and recommendations on this site.
 

karin

Member
Joined
Apr 19, 2005
Messages
14
Reason
PALS
Diagnosis
02/2000
Country
CA
State
ON
City
Toronto
Welcome
I'm sorry you had to join the club.
 

cajuntexusa

Active member
Joined
Apr 5, 2008
Messages
46
Reason
PALS
Diagnosis
04/2008
Country
US
State
TN
City
Thompsons Station
Hello Ste,

So very sorry that you are here with us. My husband was diagnosed back in March, 08. You will find helpful information here. if you have a question, just ask. We are here for you.

Kind regards,
 

Rob Kerr

Member
Joined
Feb 18, 2008
Messages
12
Reason
PALS
Diagnosis
10/2004
Country
US
State
Wa
City
Tacoma
Hello

My name is Rob and I have had ALS for nearly five years. This is a great sight for getting information,opinions,and advice. Ask any questions you may have there are lots of wonderful people here willing to help.

Take care
Rob
 

Ste orourke

New member
Joined
Jul 11, 2008
Messages
2
Reason
PALS
Diagnosis
06/2008
Country
AU
State
SA
City
adelaide
Thanks

Thanks everyone for making me feel welcome. Crystal my symtoms were that my left arm started to get week and I started to loose use of my fingers thought I had a trapped nerve in my neck (I wish) It took about 6 weeks to see 2 speacialists and get a diagnosis, I have an appointment this month with the MND clinic, so I am in the early stages but like the doctors say there is no telling how quick this thing can take hold.At the moment I am still working and everything is normal.
Cheers ste
 

brendapals

Senior member
Joined
Jul 6, 2008
Messages
953
Reason
PALS
Diagnosis
06/2008
Country
US
State
any
City
any
Welcome Ste,
I am also new, I am in the middle-aged mothers club on this site. That is great that you are still working, I am also. We don't know what the future holds at my house either, but you have found a great site for all your questions and concerns.
Blessed weekend,
brenda
 

Icanmanz

Senior member
Joined
Jul 14, 2007
Messages
947
Reason
PALS
Country
Uni
State
Texas
City
Tomball
Hi Ste! Sorry you had to join. My name is Irma, I am a former Cal. I have been on this forum for a little over a year. I joined after I lost my 38 yr old son to Als on June 3, 2007. I will keep you in my prayers. May God help you through this journey. Keep us posted. God bless you. Oh yes, don't hold back anything. Whatever question you may have, please ask, that is why we are here for. Welcome!

Irma
 
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