john0812
Member
- Joined
- Aug 13, 2006
- Messages
- 12
- Reason
- Learn about ALS
- Country
- CA
- State
- B.C.
- City
- Vancouver
Hi there everyone!
I am pre-diagnosis. I am Male, 51, and after procrastinating for perhaps a year (maybe more?) finally went to my doctor in early Feb 06 with fascic. in thumbs, some fingers, among other places. First Neuro visit led to 2nd at an ALS clinic. I've been in fear city ever since. It monopolizes my life - even though the neuro at the clinic said that people who come in with fascic. don't usually end up with als. She saw no evidence of 'denervation' at that time (mid April). Since then the fascic have increased in # of areas and generally decreased in intensity (I think because the muscles are weakening). I have less strength left in my thumbs than in April - at least I think so. Everything still moves fairly well. One thing that concerns me is a weird feeling in my throat - sometimes it seems like when I swallow it kind of does something in between a squeak and a gurgle, deep down in my throat. Also, I did for a day or so experience a very low vocal energy situation. Thinking back, I have probably for over a year lost my voice if I have had to speak loudly (due to background noise) for extened periods (say at a party or something).
So .... back in April I was seeing a naturopath for back problems that result in numbness in my feet - especially my left foot, also thigh. I was getting prolotherapy injections in several areas - gvenerally it did nothing for me although my back does seem more solid - but the foot numbness is actually worse.
Anyways I soon returned to another naturopath that I had seen before ((1989) as I trust him. He put me on a supplement program, then added yeast killer, then finally mercury chelation. I would like to point out that he is ultra conservative. I can eat pretty much anything that I want (and do). The yeast killer is conservative, also the DMSA (100 mg with Cilantro tincture every 3rd day).
I decided to stop drinking and did that around 3 months ago (thinking that if I was going to fight whatever it was - I was going to give my body all that I could). I also do not eat sugar, drink pop, or coffee (green tea once or twice a day).
My naturopath said that I did not need to get my amalgams out, saying that the DMSA program would pull out the mercury faster than It was going in.
I felt that my symptoms were getting worse about 1 1/2 months ago, and decided then to get the amalgams out via a holistic dentist (and a single root canal for good measure).
It's been just over two 2 weeks since the last of the amalgams was removed.
I think my symptoms are still progressing but I am not sure. I have (last weekend) read "Eric is Winning" and I've also read a lot regarding his web site and products, etc.
My questions are:
a) I am eating pretty well normally but continue to lose weight. I weighed myself in the morning at 143 lbs (I am almost 6') - I probably weighed just over 162 lbs 3 months ago. Granteed a lot of what I've lost was in a small beer gut, butt butter, etc. but that came off within the 1st month or so. Is there any other reason that I would lose weight (if I do have als)?
b) I have continually been aware of the degradation in my hands, arms, etc. Is this normally the case?
c) I seem to be having headaches in the back of the head - is this something that others have experienced?
Thank you in advance for any responses at all - even if it's 'come back when you've been diagnosed'
PS - I couldn't figure out how to post a new message in the general forum - that's why I started this new thread .....
I am pre-diagnosis. I am Male, 51, and after procrastinating for perhaps a year (maybe more?) finally went to my doctor in early Feb 06 with fascic. in thumbs, some fingers, among other places. First Neuro visit led to 2nd at an ALS clinic. I've been in fear city ever since. It monopolizes my life - even though the neuro at the clinic said that people who come in with fascic. don't usually end up with als. She saw no evidence of 'denervation' at that time (mid April). Since then the fascic have increased in # of areas and generally decreased in intensity (I think because the muscles are weakening). I have less strength left in my thumbs than in April - at least I think so. Everything still moves fairly well. One thing that concerns me is a weird feeling in my throat - sometimes it seems like when I swallow it kind of does something in between a squeak and a gurgle, deep down in my throat. Also, I did for a day or so experience a very low vocal energy situation. Thinking back, I have probably for over a year lost my voice if I have had to speak loudly (due to background noise) for extened periods (say at a party or something).
So .... back in April I was seeing a naturopath for back problems that result in numbness in my feet - especially my left foot, also thigh. I was getting prolotherapy injections in several areas - gvenerally it did nothing for me although my back does seem more solid - but the foot numbness is actually worse.
Anyways I soon returned to another naturopath that I had seen before ((1989) as I trust him. He put me on a supplement program, then added yeast killer, then finally mercury chelation. I would like to point out that he is ultra conservative. I can eat pretty much anything that I want (and do). The yeast killer is conservative, also the DMSA (100 mg with Cilantro tincture every 3rd day).
I decided to stop drinking and did that around 3 months ago (thinking that if I was going to fight whatever it was - I was going to give my body all that I could). I also do not eat sugar, drink pop, or coffee (green tea once or twice a day).
My naturopath said that I did not need to get my amalgams out, saying that the DMSA program would pull out the mercury faster than It was going in.
I felt that my symptoms were getting worse about 1 1/2 months ago, and decided then to get the amalgams out via a holistic dentist (and a single root canal for good measure).
It's been just over two 2 weeks since the last of the amalgams was removed.
I think my symptoms are still progressing but I am not sure. I have (last weekend) read "Eric is Winning" and I've also read a lot regarding his web site and products, etc.
My questions are:
a) I am eating pretty well normally but continue to lose weight. I weighed myself in the morning at 143 lbs (I am almost 6') - I probably weighed just over 162 lbs 3 months ago. Granteed a lot of what I've lost was in a small beer gut, butt butter, etc. but that came off within the 1st month or so. Is there any other reason that I would lose weight (if I do have als)?
b) I have continually been aware of the degradation in my hands, arms, etc. Is this normally the case?
c) I seem to be having headaches in the back of the head - is this something that others have experienced?
Thank you in advance for any responses at all - even if it's 'come back when you've been diagnosed'
PS - I couldn't figure out how to post a new message in the general forum - that's why I started this new thread .....