Kerri
New member
- Joined
- Oct 29, 2007
- Messages
- 6
- Reason
- Lost a loved one
- Country
- US
- State
- ID
- City
- Eagle
Hi, this is my first post. I have been visiting and reading your posts this past week. I am finding such good information here and a whole lot of inspiration!
I have not been diagnosed, but have some pretty severe symptoms.
I have lost much strength in my limbs, particularly my left side. I can
no longer put my weight on my left foot. I also can't pick it up far
from the floor. (Most the time my walk is a shuffle). I am falling quite often.
I am not able to carry anything with weight beyond a few ounces with my left hand and arm--a dinner plate is beyond me. (I'm using paper plates now and sometimes I still can't
hold one with my left hand.) I use my right arm and hand to compensate, but they too are weakening. My hands are having a hard time with coordination.
My torso is not able to hold me up in a sitting position, so I have to
recline or lay down.
Breathing has been difficult for quite a long time, but I have thought it was
asthma and chemical sensitivity related to it. Recently after having two episodes where I had to hold my airway open by laying down and holding my neck back, I realized my muscles were struggling hard to expand and get air. The asthma nebulizer did not help. (Scarey feeling!) Every night now when I go to bed, my respiratory muscles hurt and I struggle for breath.
When I talk my voice becomes quiet and hoarse and it is hard to breathe. Sometimes
it is hard to swallow. I often bite my tongue (literally) and slur my words, or stop mid-sentence because my muscles are too tired to finish what I wanted to say.
My muscles twitch daily and often (and have been for a couple years or so), last night the fasiculations in my legs woke me up, they are very strong. I have had them on my left side for a couple years and now my left side is permanently weak. They have recently started on my right side, my torso, and the bottom of my face.
Two years ago I saw a neurologist here in Idaho, who did a partial EMG-
said it looked normal and he couldn't help me.
My Grandfather died of ALS. The last two months the progression of my
symptoms has been so fast and changed from intermittent to permanent (my
left side and breathing in particular.) As I am learning more about ALS
I am feeling very concerned that it maybe what I am experiencing.
I would appreciate any suggestions on how to get to a doctor who
knows something about ALS/MND in a timely manner especially when living in a place like I do--Idaho.
Thank you for any advise or suggestions you may be able to share. Kerri
I have not been diagnosed, but have some pretty severe symptoms.
I have lost much strength in my limbs, particularly my left side. I can
no longer put my weight on my left foot. I also can't pick it up far
from the floor. (Most the time my walk is a shuffle). I am falling quite often.
I am not able to carry anything with weight beyond a few ounces with my left hand and arm--a dinner plate is beyond me. (I'm using paper plates now and sometimes I still can't
hold one with my left hand.) I use my right arm and hand to compensate, but they too are weakening. My hands are having a hard time with coordination.
My torso is not able to hold me up in a sitting position, so I have to
recline or lay down.
Breathing has been difficult for quite a long time, but I have thought it was
asthma and chemical sensitivity related to it. Recently after having two episodes where I had to hold my airway open by laying down and holding my neck back, I realized my muscles were struggling hard to expand and get air. The asthma nebulizer did not help. (Scarey feeling!) Every night now when I go to bed, my respiratory muscles hurt and I struggle for breath.
When I talk my voice becomes quiet and hoarse and it is hard to breathe. Sometimes
it is hard to swallow. I often bite my tongue (literally) and slur my words, or stop mid-sentence because my muscles are too tired to finish what I wanted to say.
My muscles twitch daily and often (and have been for a couple years or so), last night the fasiculations in my legs woke me up, they are very strong. I have had them on my left side for a couple years and now my left side is permanently weak. They have recently started on my right side, my torso, and the bottom of my face.
Two years ago I saw a neurologist here in Idaho, who did a partial EMG-
said it looked normal and he couldn't help me.
My Grandfather died of ALS. The last two months the progression of my
symptoms has been so fast and changed from intermittent to permanent (my
left side and breathing in particular.) As I am learning more about ALS
I am feeling very concerned that it maybe what I am experiencing.
I would appreciate any suggestions on how to get to a doctor who
knows something about ALS/MND in a timely manner especially when living in a place like I do--Idaho.
Thank you for any advise or suggestions you may be able to share. Kerri