Whoa!
HI FOLKS!...Unless there is another Manfred ou there with almost the same number of posts ....someone is scamming! I have Eric Edney's book and I have heard of his situation...and as I have stated here as elsewhere ,he has survived with his a.l.s. doing what works for him..noone has yet disputed his affliction nor his success with whatever he claims to have done(no one has as yet disproved the claims of several other A.L.S. "survivors")It happens to be a fact that stephen Hawkings not only has survived A.L.S. for 40yrs,but has married and had children..he was recently in the news as having experienced "Zero Gravity" on an aeroplane trip designed to give people this experience..he is also a well known scientist (black hole theory etc...) but his crowning achievement has to be ,not only his brilliance but the fact that he has "contolled" his affliction and may yet live to see or be instrumental in finding a "cure"(He has recently inaugurated the opening of an A.L.S.RESEARCH CLINIC in Israel!)I was refered to Eric Edney's book by someone from a neurological research institute (he has a P.H.D.) with the connotation that although the story of Eric is winning has no scientific support for ti's contention it is interesting reading...I have the book....yes!,but I have not gotten beyond scanning through it as some of the indications do seem outrageous!Give the cost of maintainance of this affliction ,especially for some in the more advanced stages I couldn't really fault him for making money on his book.....I also would not call him a fake or a charletan...obviously what he says he's doing works for him...the post previous to this one was NOT MADE BY ME!There are no acquaintances or "relatives recentlydiagnosed" in my milieu...the person involved is my Daughter and she was missdiagnosed,and subsequently diagnosed with p.m.a. an oddessy of three major cities and three reputable neurological institutes. Of all the long term survivors I have researched ,Eric,even though he is "winning" seems to be all over the place with his theories...that doesn't mean that all of his conceptions are wrong.is not telling any one to do anything but research and make up their own minds...the individual is after all is said and done responsible for his or her own conclusions and actions!As I have stated before ,my daughter has embarked on a regimen of rilutek and V-E ...prescribed by her neuro..as well as a combination of Anti-oxidants and light exercises...pilates...as well she has always eaten healthy food products even before this diagnosis.If you do the research youl'll find that there is a common denominator in both disease and treatment,however what triggers this phenomenon is still being researched(over 100yrs now),so in the meantime if someone finds something that works for them,and they share that info...use it or don't... but if it works ? ther is no cure yetso as far as I can see ,slowing and /or halting progression for however long one can do it increases one's chance to be around when a cure is finally discovered !Furthermore my daughter has had tis condition for 5yrs not 7!So whoever is using my name to post sarcasm I don't find it amusing! Manfred