janandscott
New member
- Joined
- Jan 16, 2018
- Messages
- 6
- Reason
- Loved one DX
- Diagnosis
- 12/2015
- Country
- Uni
- State
- FL
- City
- Jacksonville
I'm Janet, my 30 yr old son was diagnosed with ALS in December 2015 and he has had a progressive decline since. He uses a trilogy 24/7, is currently on tube feed and he can still talk. Over Christmas holiday he was in the hospital for pneumonia, He is back home now but he is having really soft stools and alot of uncomfortable gas and bloating. we've tried Imodium but that hasn't helped. He's suppose to get 6 cartons of his nutriention but he's so uncomfortable we're lucky if we get 2 a day. Anyone out there have any suggestions on what we can do to make him more comfortable so he can get enough calories and help him get rid of the gas? Would appreciate any suggestions
Janet
Janet