- Sep 12, 2007
- Merritt Island
My mom was diagnosed in March of this year with ALS. Her symptoms looking back started about late September/ early October of 2006. First she was just falling a little more than usual. then breathing was labored...now she can barely walk without a walker she uses a bipap machine at night, she cant roll over when she sleeps..someone has to be with her 24/7 because if she tries to sit down or stand up by herself she falls...my dad is the primary caregiver and he is always mad, he wont talk to anybody, my mom is constantly crying... i know that crying is theraputic but it is to the point that it is self destructive for her...she cant use her limited functions after she cries.... what can I do... this really sucks.. I am only 21 years old, trying to work and go to nursing school, I live with my boyfriend so I am trying to have a relationship, and I am trying to hold my family together.........I AM SOOOOOO SCARED!