Welcome Jghope
welcome to our little home. i have been coming here for several months now, and have learned more here than any 20 doctors could have told me. als is a rare disease, and unless you are actually being treated by an als specialist, you are not going to learn all you need to know.
in this forum, you can post any question you want to, and several patients with als or their caregiver will answer as best they can.
the moderator here, capt. al, tries and answers every question he can, and he welcomes every new member personally. he has been so very helpful to me.
i posted yesterday about my husband's pants not fitting and thanks to all who posted about his weight going to his waist and stomach due to no muscles in the chest area etc. i will go buy some new pants for him tomorrow - xlarge with just elastic waist.
also, to whomever reads this - do you caregivers experience anger from your als partner that comes from out of the blue over just nothing - ? i know the anger is not at us, but at the disease, but gosh, it is hard to take sometimes....
jackiemax