papaw50
Active member
- Joined
- Jun 19, 2006
- Messages
- 39
- Reason
- PALS
- Country
- US
- State
- West Virginia
- City
- Ravenswood
Hello,
I am new to this website. My husband has just been given the diagnosis of ALS after many months of tests. He has a follow up visit this Monday (June 26th) for another EMG.
I guess right now we're in denial - keep hoping they will say they've made a mistake and that it's actually MMN (which is treatable).
My husband fell from scaffolding about three years ago and broke his right shoulder. He keeps thinking that his symptoms are related to that accident. But, I honestly don't agree with him.
His symptoms started about one year ago - a little bit of weakness in his thumb and pinkie finger. Then the twitching started in his arms - now both hands and arms are weak. He is having trouble buttoning his shirts, tying shoes, using screwdriver, etc. His twitches have gotten worse - both arms, chest, back, face, etc. He has trouble holding his arms above his head in that position.
I've read as much as I can get a hold of and done a lot of research. But, I've not read much about fatique being a symptom. He seems to get more tired lately than ever - he goes to sleep earlier than me. That is quite a switch. He is only 49 years old.
About one month ago, his right leg swelled and two knots appeared on his right foot (the top of it). One doctor thought he had a blood clot - but nothing showed up on the test. Has this happened to anyone? It is still bigger than his left leg (the calf).
Well - just wanted to say hello. Our outlook is positive - we will not just lie down and die. We will fight this disease head on and together.
love to all,
Patty
I am new to this website. My husband has just been given the diagnosis of ALS after many months of tests. He has a follow up visit this Monday (June 26th) for another EMG.
I guess right now we're in denial - keep hoping they will say they've made a mistake and that it's actually MMN (which is treatable).
My husband fell from scaffolding about three years ago and broke his right shoulder. He keeps thinking that his symptoms are related to that accident. But, I honestly don't agree with him.
His symptoms started about one year ago - a little bit of weakness in his thumb and pinkie finger. Then the twitching started in his arms - now both hands and arms are weak. He is having trouble buttoning his shirts, tying shoes, using screwdriver, etc. His twitches have gotten worse - both arms, chest, back, face, etc. He has trouble holding his arms above his head in that position.
I've read as much as I can get a hold of and done a lot of research. But, I've not read much about fatique being a symptom. He seems to get more tired lately than ever - he goes to sleep earlier than me. That is quite a switch. He is only 49 years old.
About one month ago, his right leg swelled and two knots appeared on his right foot (the top of it). One doctor thought he had a blood clot - but nothing showed up on the test. Has this happened to anyone? It is still bigger than his left leg (the calf).
Well - just wanted to say hello. Our outlook is positive - we will not just lie down and die. We will fight this disease head on and together.
love to all,
Patty