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momap53

Very helpful member
Joined
Jul 2, 2011
Messages
1,663
Reason
PALS
Diagnosis
05/2011
Country
US
State
GA
City
EGA
Welcome aboard Mats!
 

Judith Ann

Distinguished member
Joined
Jan 22, 2012
Messages
134
Reason
PALS
Diagnosis
11/2011
Country
US
State
AR
City
Wickes
Welcome Mats...sounds like you already have the positive attitude and determination it takes to deal with ALS!

Judy
 

Miss

Very helpful member
Joined
Apr 11, 2010
Messages
1,781
Reason
Lost a loved one
Diagnosis
04/2010
Country
US
State
In the Land of Cotton
City
Way Down South
Willkommen, Mats!

Mein Deutsch ist nicht gut, aber ich dachte, dachte, das sei der beste Weg, um Hallo zu sagen. Es gibt so viele Menschen auf diesem Forum bereit, Ihnen zu helfen. Seien Sie gut.

Missy
 

myytro

New member
Joined
Feb 23, 2012
Messages
2
Reason
Other
Diagnosis
12/3456
Country
ABC
State
CcBbAa
City
AaBbCc
I'd like to thank everyone for the warm welcome, your advice and the good wishes.

Even though i feel understood by my family and friends - talking to people who are affected by this disease is different. When i'm reading your words i truly feel that we're sharing the same burden. I always hesitated to contact other people with ALS because i was afraid that this could feel like a terrible look ahead - related to my future physical condition. Now, after dealing with ALS for over three years, i'm more relaxed because my health situation seems to be relatively stable.

Missy, dein Deutsch ist gut. :)

Mats
 

AKjo

Distinguished member
Joined
Nov 3, 2010
Messages
390
Reason
Lost a loved one
Diagnosis
09/2010
Country
US
State
AK
City
Anchorage
Mats, are you an artist? I'm looking at your avatar and wondering if it is a drawing your have done. If so, it is very impressive! So, so sorry about your ALS - hope it stays stable for a looooong time.
 

tammyg

Distinguished member
Joined
Jun 10, 2011
Messages
381
Country
US
State
md
City
baltimore
Welcome Mats, so sorry you had to find the forum. We are her 24/7. Alot of smart people here, they don't beat around the bush. They have great advice about everything or know where to find it.
 

nikolab

Active member
Joined
Feb 10, 2012
Messages
86
Reason
PALS
Diagnosis
04/2006
Country
SRB
State
Serbia
City
Nova Pazova
Hi Mats, welcome to the family, so sorry for your ALS diagnosis!
 

myytro

New member
Joined
Feb 23, 2012
Messages
2
Reason
Other
Diagnosis
12/3456
Country
ABC
State
CcBbAa
City
AaBbCc
@Akjo Haha, I wish i could draw like this. My profile picture actually shows "Vertrauen" (german for trust) by Egon Schiele, an expressionist painter from austria. I like this picture a lot, so i decided to use it as my picture here. Glad you like it as well! :)

Thanks to everyone for your welcome. I'm currently extremely busy with studying for my exams, but i'm sure i'll spend more time on here when i'm finally done with studying for this semester. :)

Mats
 

vzandt

Senior member
Joined
Nov 12, 2011
Messages
582
Reason
Lost a loved one
Diagnosis
04/2010
Country
US
State
N.H.
City
Noneknown
Hi Mats. Welcome
 

AKjo

Distinguished member
Joined
Nov 3, 2010
Messages
390
Reason
Lost a loved one
Diagnosis
09/2010
Country
US
State
AK
City
Anchorage
Hi Mats, I guess I better go take an art appreciation class so I recognize some art pieces! I have two kids in university right now, so I know how stressful and busy exam time is. Good luck with that!
 

Tofinodays

Active member
Joined
Aug 7, 2011
Messages
32
Diagnosis
01/2011
Country
CA
State
Ontario
City
Greater Toronto Area
Hello Mats,

You mention that you are still able to get out of the house but worry about falling. Is this the reason why you are pursuing distance education? If your post-secondary institution is within commuting distance of your home, would a walker or an individual to assist allow you to be on campus? My husband saw assistive devices as a loss of independence at a time when they would have actually allowed him to maintain his independence and it would be wonderful if you could participate in the university experience in person. I think Germany is ahead of many countries in terms of accessibility. Is that accurate? We have many people offering to help us we often difficult to identify needs eventhough we have so very many. Perhaps there is someone in your life who would like to check the university or even a bookstore for accessibility...?
 

notgivnup

Senior member
Joined
Nov 8, 2010
Messages
833
Reason
PALS
Diagnosis
11/2010
Country
OS
State
Darkside of Moon
City
country
Hello Mats, Welcome, hope to talk with you more after exams.
 

KissJ

Distinguished member
Joined
Jul 6, 2011
Messages
380
Reason
Loved one DX
Diagnosis
05/2011
Country
US
State
Pennsylvania
City
Greensburg
Welcome Mats! You did come to the right place! You will receive a great deal of support here.
 

myytro

New member
Joined
Feb 23, 2012
Messages
2
Reason
Other
Diagnosis
12/3456
Country
ABC
State
CcBbAa
City
AaBbCc
Dear Tofinodays,

The stress of leaving the house and every aspect involved in getting to the campus using crowded public transport, walking around on the campus etc., is indeed a main aspect for my decision to pursue distance education.

I feel neither completely disabled nor comfortable with walking on my own for a longer time or distance. A crack in the pavement could make me fall while a stairway may cause absolutely no problem. The slow progression of the ALS makes it even more difficult for me to accept this disease and to actually call myself “disabled”. These thoughts always prevented me from reflecting about assistance, may it be personal or through walking aids etc.. I’m very aware of how paradoxical this seems, but being afraid to use assistance because of fearing the loss of independence while it actually could improve ones own ability live autonomously, is a very common feeling to me.

At the moment, i’m quite satisfied with my educational situation, but of course distance education makes me feel a bit lonely from time to time, despite all advantages of the Web 2.0 - real life friendships are different.

I’m thinking about meeting some other students for studying together next semester. There are so many options of getting in touch and i feel this wish make new contacts more than ever before. I can hardly wait for the summer. Have been outside by myself today and i feel how much easier it is to walk when the temperatures are mild.
 

Ms. Pie

Very helpful member
Joined
Mar 26, 2011
Messages
1,847
Reason
PALS
Diagnosis
10/2010
Country
US
State
CO
City
Colorado
Look into AFOs Matts. They make walking so much easier and you can't see them under slacks. And there are some stylish canes out there which help with balance. Be careful with yourself, pride be damned. Injuries from falls can disable or kill lots of people all the time. It's a pleasure to meet you!
 
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