rocmg
Distinguished member
- Joined
- Dec 29, 2008
- Messages
- 389
- Reason
- PALS
- Country
- UK
- State
- N/A
- City
- N/A
Hello all... I have to say I feel a bit like the prodigal son returning after such a long absence from the forum. I hope you will forgive me.
I was saddened to learn of the death of joelc recently and felt the need to post again to tell you all that I still think of you often with the usual admiration and respect.
On Saturday I will attend the funeral of another PALS. A lady from near my town who passed away yesterday morning after a three and a half year battle with the beast that is ALS. I hope if there is such a place is heaven that she is there tonight, helping her daughters through what is the saddest time of their lives.
With regards my own lovely mammy, she now uses a wheelchair often although I made her do short walks from the bathroom to her bedroom to keep her morale and strength up. I'm sad to say she spends more days than I would like in bed or in her chair by the fireside. However, she is still eating, talking intelligibly and no bipap has been suggested by the MND nurse since she still sleeps with one pillow. Long may this continue, please! I'm almost scared to say this in case we encounter some other horrible change. We are now in our third year of diagnosis and perhaps as many as 4 or 4 1/2 years since symptom onset. So she's doing good, right?
It is the one year anniversary of my brothers death in two weeks time, so things lately have been very emotional for us all. To mark the occasion we will fill the house with flowers and music and hopefully open the windows to enjoy the beginning of Spring. Another season without him, another season of ALS, but another season nevertheless and I am trying to be grateful.
After my brother's death my dad bought me a horse so that I could pursue again my childhood love of horseback riding. He was a great horse and a better friend. So many nights I couldn't sleep and went out to him in the field and just laid my head against his mane and cried. Perhaps he knew what I meant, or perhaps he just knew I had apples in my pocket. I had him for 8 months and he was taken from me too. He died a month ago after a tragic accident. Life is just a series of losses and I'm coming to realise that. However, Im not ready to let my mum go yet, I will never be. I still dread that day. I worry about how I feel and if I will want to go on without her. I've made a plan that if I get another horse, I'm going to ride from one end of Ireland to the other, to raise money and awareness of ALS/MND. It's a pipedream at the moment, but we'll see what the next year brings...
I hope you are all well, or as well as you can be.
I will try and be in touch more regularly.
Love and best wishes.
I was saddened to learn of the death of joelc recently and felt the need to post again to tell you all that I still think of you often with the usual admiration and respect.
On Saturday I will attend the funeral of another PALS. A lady from near my town who passed away yesterday morning after a three and a half year battle with the beast that is ALS. I hope if there is such a place is heaven that she is there tonight, helping her daughters through what is the saddest time of their lives.
With regards my own lovely mammy, she now uses a wheelchair often although I made her do short walks from the bathroom to her bedroom to keep her morale and strength up. I'm sad to say she spends more days than I would like in bed or in her chair by the fireside. However, she is still eating, talking intelligibly and no bipap has been suggested by the MND nurse since she still sleeps with one pillow. Long may this continue, please! I'm almost scared to say this in case we encounter some other horrible change. We are now in our third year of diagnosis and perhaps as many as 4 or 4 1/2 years since symptom onset. So she's doing good, right?
It is the one year anniversary of my brothers death in two weeks time, so things lately have been very emotional for us all. To mark the occasion we will fill the house with flowers and music and hopefully open the windows to enjoy the beginning of Spring. Another season without him, another season of ALS, but another season nevertheless and I am trying to be grateful.
After my brother's death my dad bought me a horse so that I could pursue again my childhood love of horseback riding. He was a great horse and a better friend. So many nights I couldn't sleep and went out to him in the field and just laid my head against his mane and cried. Perhaps he knew what I meant, or perhaps he just knew I had apples in my pocket. I had him for 8 months and he was taken from me too. He died a month ago after a tragic accident. Life is just a series of losses and I'm coming to realise that. However, Im not ready to let my mum go yet, I will never be. I still dread that day. I worry about how I feel and if I will want to go on without her. I've made a plan that if I get another horse, I'm going to ride from one end of Ireland to the other, to raise money and awareness of ALS/MND. It's a pipedream at the moment, but we'll see what the next year brings...
I hope you are all well, or as well as you can be.
I will try and be in touch more regularly.
Love and best wishes.