Maestra Daniela
New member
- Joined
- Jun 19, 2022
- Messages
- 2
- Reason
- CALS
- Diagnosis
- 03/2021
- Country
- US
- State
- CA
- City
- Alameda
Hi there!
My name is Danielle (age 39) and my husband (age 43) was diagnosed with ALS in March of 2021 although he started showing symptoms in 2019. It's been quite the journey and now we are in the later stages of ALS. He started receiving hospice care at home about a month ago and we are very pleased with the extra care being provided. As his condition worsens and his body changes by the minute ( as he put it the other day) , we are preparing for a discussion about his end of life wishes. Sigh..we have been having lots of talks over the past couple of months but lately we have both been avoiding it. Nothing about ALS is easy however having a community (like this forum) helps us all feel connected and I am grateful for that
There's so much more I could say here but I will leave it at that for now. I'm off for the summer (I'm a teacher), which is nice cause now I don't have to balance two full time jobs and I can just be the best caregiver for my husband.
I look forward to engaging in conversations on this forum so I can learn from you all and hopefully help a person or two along the way.
My name is Danielle (age 39) and my husband (age 43) was diagnosed with ALS in March of 2021 although he started showing symptoms in 2019. It's been quite the journey and now we are in the later stages of ALS. He started receiving hospice care at home about a month ago and we are very pleased with the extra care being provided. As his condition worsens and his body changes by the minute ( as he put it the other day) , we are preparing for a discussion about his end of life wishes. Sigh..we have been having lots of talks over the past couple of months but lately we have both been avoiding it. Nothing about ALS is easy however having a community (like this forum) helps us all feel connected and I am grateful for that
There's so much more I could say here but I will leave it at that for now. I'm off for the summer (I'm a teacher), which is nice cause now I don't have to balance two full time jobs and I can just be the best caregiver for my husband.
I look forward to engaging in conversations on this forum so I can learn from you all and hopefully help a person or two along the way.