Hello everyone its been a long time

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comfortable with ALS

Distinguished member
Joined
Sep 24, 2007
Messages
111
Reason
Other
Diagnosis
n/a
Country
US
State
mi
City
st.clair shores
First of i would like to say Isabella is now 7 months old and doing great....i went to clevland clinic and was diagnosed with mnd.... the twitching is getting worse and so on so on.....Annmarie has been a big help to me everyday she helps me cope day to day...she truly is not only one of the nicest persons i have ever met...but an ANGEL! I miss her so much on this forum she wouldve been a good Moderator for this forum, she knows so much stuff! I had the pleasure to meet her wonderful family and darling son...very smart kid! We will always be in eachothers lives no matter where this monster takes us. I could not do it without her or Lori I had the pleasure of meeting Tim in the Hospital and let me tell you Lori is one of the best care takers i ever met. This disease is horrible i know and especially when the docs say its all in your head then finally emgs start changing and so on...i know about the whole family thing thinking your crazy i know my body. I want to thank everyone else who has helped me on here you too Grandpa Al. Mt Pockets how are you pm me sometime i loved talking to you...I wish i had better news guys but unfortunatley not...take care guys and i will talk to you soon Jenny:(
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Hi Jenny. Sorry about your diagnosed. I really thought and hoped you'd be OK. Thanks for stopping by. Say hello to Annmarie for me.

AL.
 

fmarino

Active member
Joined
Mar 9, 2008
Messages
42
Reason
PALS
Country
US
State
nj
City
new brunswick
How were you finally diagnosed? Could you share?

The reason I ask, is because it seems you had a long journey before you got the diagnosis and it didn't seem typical.
 
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