[email protected]
New member
- Joined
- Nov 16, 2008
- Messages
- 4
- Reason
- Loved one DX
- Country
- CA
- State
- Ontario
- City
- Peterborough
Hi Im new at this but Im told that this is the place to be.
I Myself do not have ALS, but my mother does, she was diagnosed with this terrible disease here at home at the end of August.
It has since been decided that she has the Bulbar AlS
She is losing the ability to talk, swallow, walk etc.
Every day there is something she can't do. We did get to go to the ALS clinic at the Sunnybrook hostipal and since she has just been put on the drug Retuzil which Im hoping will slow this disease down.
Im really having a hard time with this, I can't believe a sweet woman like this, that would do anything for anyone would end up with such a terrible disease.
My heart goes out to her each day I see her and my father.
I will be using this support group for sure.
Mary:-(
I Myself do not have ALS, but my mother does, she was diagnosed with this terrible disease here at home at the end of August.
It has since been decided that she has the Bulbar AlS
She is losing the ability to talk, swallow, walk etc.
Every day there is something she can't do. We did get to go to the ALS clinic at the Sunnybrook hostipal and since she has just been put on the drug Retuzil which Im hoping will slow this disease down.
Im really having a hard time with this, I can't believe a sweet woman like this, that would do anything for anyone would end up with such a terrible disease.
My heart goes out to her each day I see her and my father.
I will be using this support group for sure.
Mary:-(