- Feb 13, 2018
- Loved one DX
I've followed and appreciated tips and words of comfort for a while now but only signed up in Feb. My wife/best friend was DX in June of 15 at the age of 44 with Bulbar on set, symptoms actually started in Oct of 14. At DX was when we found out that she is the 7th one in the family tree with it. C9ORF72 was confirmed at her first clinic. We were blessed for her to keep mobility until Sept 17. As a fulltime cals since Dec 1, I can say that this forum has helped me cope and keep my sanity. Thank you all for being a help to many. We are still fighting the fight, it's just harder to finish the rounds sometimes.