Hello all

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Billard

New member
Joined
Feb 13, 2018
Messages
4
Reason
Loved one DX
Diagnosis
06/2015
Country
US
State
LA
I've followed and appreciated tips and words of comfort for a while now but only signed up in Feb. My wife/best friend was DX in June of 15 at the age of 44 with Bulbar on set, symptoms actually started in Oct of 14. At DX was when we found out that she is the 7th one in the family tree with it. C9ORF72 was confirmed at her first clinic. We were blessed for her to keep mobility until Sept 17. As a fulltime cals since Dec 1, I can say that this forum has helped me cope and keep my sanity. Thank you all for being a help to many. We are still fighting the fight, it's just harder to finish the rounds sometimes.
 

GregK

Extremely helpful member
Joined
Jan 29, 2013
Messages
2,775
Reason
PALS
Diagnosis
11/2012
Country
US
State
CO
I'm sorry to welcome you here, but glad that you've found the Forum useful! :)
 

lgelb

Forum Supporter
Moderator
Joined
Nov 5, 2009
Messages
7,839
Reason
Lost a loved one
Diagnosis
09/2009
Country
US
State
WA
Very sorry to hear about your wife, Billard. Let us know how we can help.

Best,
Laurie
 

whereswaldo

Active member
Joined
Mar 3, 2018
Messages
83
Reason
PALS
Diagnosis
06/2013
Country
US
State
Ca
Welcome to the forum, as you said, it is a good place to get all kinds of information and some shoulders to lean on if needed. I was like you, at first watching from the outside. Now I'll through my 2 cents worth in every now and a then.
Join in when you can.
 

KimT

Forum Supporter
Extremely helpful member
Joined
Nov 18, 2014
Messages
3,525
Reason
PALS
Diagnosis
08/2015
Country
US
State
South
Feel free to ask questions, vent, whatever you need to help you and your wife.
 
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