Hello again… emg question

[ik2014]

Hello all,
Again, I apologize for coming back after I was given reassuring advice from Laurie. I went back to my follow up, and an MRI was done of my brain without contrast. He didn’t call but sent email stating “all is fine” and that was it. He did give me an emg of both my arms and was no concern. However, I’ve expressed to neurologist that alot of the symptoms are in my legs. I was not allowed to post on my older thread. Symptoms remain the same. Numbness/tingling in arms and hands, especially waking up. When I set down, when for a second my legs goes numb and I can’t get back up. Whole body twitching, aches and pains. Again, I apologize if I offend anyone. I’m just not sure what to do.

 

[affected]

I'm so sorry you are still so worried about this disease.
You don't have a single ALS symptom, and you are being told by specialists that examine you and do the correct tests that you don't have any sign of ALS, neither on clinical exam, nor on EMG.
You don't actually ask a question in your post.
I strongly suggest you return to your GP and discuss your concerns and what might be the next step in helping you return to full health.

 

[ik2014]

I appreciate your response, and I apologize for not asking a direct question. Because my symptoms are in my legs, would it be good to ask for emg in my legs? Both neurologist are not fans of EMGs of legs? Their response was “not needed” or “always has findings”

 

[Bestfriends14]

You've stated that your symptoms are in your arms, too. If that is the case, after two EMGs, regardless of where, something would have been picked up. As it is, you've been given two diagnoses of mild ulnar issues (1st EMG) and the second EMG, no issues at all. Couple that with your clean clinical exams, you should be reassured, no?

 

[affected]

I wonder if you read my reply to you, I'll repeat:
You don't have a single ALS symptom, and you are being told by specialists that examine you and do the correct tests that you don't have any sign of ALS, neither on clinical exam, nor on EMG.
I strongly suggest you return to your GP and discuss your concerns and what might be the next step in helping you return to full health.

Neurologists are highly trained and know which muscles to test, so you can be assured if they didn't want to test your legs, you did not need them tested, no matter what you think would have been the right way to conduct the testing.

 

[lgelb]

The hallmark of ALS is certain EMG abnormalities even in muscles that you think are fine or only mildly affected. So the fact that they did not test your legs is not concerning because your arms were fine. If there were motor nerve problems with your arms, they would have tested at least one leg.

You are good! But you are still concerned. So I would ask about PT. Your response to that can help narrow down possible causes and solutions. But ALS is not one of them, nor any widespread neurologic disease, from these reports.
--Laurie