Healey trial update video

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
11,016
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
 

Jlynn

Distinguished member
Joined
Mar 16, 2016
Messages
412
Reason
Lost a loved one
Diagnosis
12/2015
Country
US
State
NH
City
Wolfeboro
Very happy to say that my Zinnias for ALS this summer was able to donate $1895.25 to the Healey Center for ALS😊
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
11,016
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
Thank you for that! I do believe the Healey Center is doing good work and use their donations wisely. You can always specify an area but as well as clinical trials, they do lab research, have a small expanded access program, have the House Calls home care program and have started a program called PreventALS which is studying carriers to find early biomarkers which should help everyone with earlier better diagnostics
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
11,016
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
The first three arms of the Healey trial are now fully enrolled Hoping for positive results!
 

affected

Guru status reached
Joined
Apr 26, 2013
Messages
13,787
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
AU
City
lala land
so good to see you @Jlynn 🤗🤗🤗
great too that you are still doing the zinnias. hope you are keeping well.
 

Jlynn

Distinguished member
Joined
Mar 16, 2016
Messages
412
Reason
Lost a loved one
Diagnosis
12/2015
Country
US
State
NH
City
Wolfeboro
Thanks Tillie. I still lurk in the background! I’ll always feel a connection here to all of you wonderful people.❤️
 
Top